« previous next »
Pages: [1]

Author Topic: AN Awareness at Symposium  (Read 6140 times)

Captain Deb

  • Hero Member
  • *****
  • Posts: 3316
  • Phearless Phyll and Captain Deb!
    • Captain Deb
AN Awareness at Symposium
« on: November 29, 2006, 11:37:57 am »
I certainly hope that the Philly Symposium will have a program on raising awareness for AN. If not, maybe we patients may be able to start shaking things up a bit. We need to get Mark Ruffalo involved. We need to raise hell with insurance companies who regard MRI's as a last ditch effort. That misdiagnosis thread has got my dander up!!! AAAAAAAAARRRRRRRRRRRRRRRR!!!!

Capt Deb 8)
Logged
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Pembo

  • Hero Member
  • *****
  • Posts: 644
Re: AN Awareness at Symposium
« Reply #1 on: November 29, 2006, 12:34:14 pm »
I agree with you!!!!
Logged
Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: AN Awareness at Symposium
« Reply #2 on: November 29, 2006, 03:09:12 pm »
hi captain deb

when is the philladelphia symposium, how do i find out about it?

thanks, nancy
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Captain Deb

  • Hero Member
  • *****
  • Posts: 3316
  • Phearless Phyll and Captain Deb!
    • Captain Deb
Re: AN Awareness at Symposium
« Reply #3 on: November 29, 2006, 03:26:28 pm »
Nancy-go to the ANA website by clicking on their logo at the very top of the screen. The bulletin with all the info should be out soon as well.
Capt Deb 8)
Logged
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Obita

  • Hero Member
  • *****
  • Posts: 985
Re: AN Awareness at Symposium
« Reply #4 on: November 29, 2006, 04:16:40 pm »
I have read quite a few Mark Ruffalo interviews but I think this is the best:

http://nymag.com/nymetro/movies/features/n_8518/index.html

Now, if we just knew how to find him.......
Logged
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: AN Awareness at Symposium
« Reply #5 on: November 29, 2006, 04:39:05 pm »
thanks, Capt.     

I never knew that was there. (but I'm learning computers, a little at a time). 

ps   i'll make him an offer he can't refuse (being a paesan & all  lol ).

« Last Edit: November 29, 2006, 04:47:27 pm by nancyann »
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Gennysmom

  • Hero Member
  • *****
  • Posts: 1070
  • Genny says "La!"
Re: AN Awareness at Symposium
« Reply #6 on: November 29, 2006, 06:09:18 pm »
Good article Kathy!  With six degrees of separation out there somebody has to know somebody!!!!  He obviously gets it....even about the cognitive stuff!
Logged
3.1cm x 2.0cm x 2.1cm rt AN Translab 7/5/06
CSF leak 7/17/06 fixed by 8 day lumbar drain
Dr. Backous, Virgina Mason Seattle
12/26/07 started wearing TransEar

lmurray69

  • Sr. Member
  • ****
  • Posts: 326
Re: AN Awareness at Symposium
« Reply #7 on: November 29, 2006, 06:29:01 pm »
eye eye caption we all agree...
Logged
radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

Obita

  • Hero Member
  • *****
  • Posts: 985
Re: AN Awareness at Symposium
« Reply #8 on: November 29, 2006, 06:33:04 pm »
Yep, thats why I liked this interview.....and his Dr. was rather honest with him.  

How about this:  

The next one to have surgery at House gets to go find him in the Hollywood Hills.  After all, don't you need to hang around there for about 10 days?  Might as well go sightseeing and stalking.  ::)
Logged
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Battyp

  • Hero Member
  • *****
  • Posts: 2361
Re: AN Awareness at Symposium
« Reply #9 on: November 30, 2006, 08:51:33 am »
stalking?  Did someone mention stalking?  And it's a man too...I'm on it mcgruff  LOL hopefully he doesn't become wise and run or I'll never catch him  LOL
Logged

Captain Deb

  • Hero Member
  • *****
  • Posts: 3316
  • Phearless Phyll and Captain Deb!
    • Captain Deb
Re: AN Awareness at Symposium
« Reply #10 on: November 30, 2006, 11:48:17 am »
Batty dear--you defintely ought to find a career as a researcher or grant-writer of some kind--you would rock at it!!! My favorite rat-terrrier!!!
Capt Deb 8)
Logged
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7449
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: AN Awareness at Symposium
« Reply #11 on: November 30, 2006, 12:59:22 pm »
Dang it! It just hit me!  *ow!*

My nephew works for CNN!  HELLO!!!!!!!!!!!!!!!!!!!!  Did someone mention Dr. Sanja Gupta in a thread here?  My nephew got me a personalized autograph copy of Anderson Cooper's book and my nephew does PR for CNN in NY.

someone fill me in as to what is needed for AN awareness and Dr. Gupta!

xoxoxoxoxoxoxox
Phyl
Logged
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
Pages: [1]
« previous next »