Good evening everyone.
My apologies for not updating after my second MRI. I had great news and the tumor continues to die. I have one more MRI on the yearly basis, as long as everything continues to progress as it is. The hope is that 2023 will show all dead, and then the MRI's will shift to every 2 years.
Facial issues: I have had a second round of botox and the results have been very good. The only interesting pieces is that I definitely don't blink in unison. The AN side is kind of frozen but it is the resting face that I was going for. I have started to make it a game to see who I can freak out with the crazing blinking....hahahaha what else can you do? But to be serious not that bad, it is a lot in my head. The hubby says he doesn't even notice it...but he has to say that.
My big challenge is I have moved and will be trying to coordinate all of the appointments with OHSU, now Dr. Murphy, she is wonderful too! But I am getting close to botox again, but I will see about maybe seeing about a different or reduced shots to see if I can work through some of the not being able to blink in unison. Will keep you all posted.
Again over all I will say the only thing I would have done different (if I knew then what I know now) would do the radiation sooner. I would have insisted on doing the radiation instead of WW, but normally they are not rapid growth. So really would have done nothing different, but it is fun to talk a good game.
I just hope this helps someone work through the decision process for themselves. Good luck to you all and keep us posted.