Author Topic: Recommended medication and/or supplements before Radiation?  (Read 1960 times)

JW123

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Recommended medication and/or supplements before Radiation?
« on: February 16, 2023, 11:59:19 am »
Hey all!
Its been a while since my last post.
In 2011 I had surgery to remove a larger AN. The bugger is now regrowing and this time I am going to go the radiation route (gamma knife).

I have seen a couple comments on here about taking either a supplement/vitamin or medications before radiation to help reduce the effect on the facial movement nerve. Can anyone speak to this? Taking what and for how long? My doctor hasn't said anything yet about it, but there is still time before the procedure (late March). Has anyone's doctors recommended any pretreatments to them?

Are there any other things people are doing to help in reducing the likelihood of facial nerve damage or possibly reduce effect on facial nerve before gamma knife/cyber knife?

Thanks,
JW
Left side VS - 2.0 x 2.7
Retrosigmoid on Oct 17th 2011
Surgery at Mayo Clinic with Dr. Link & Dr. Driscoll
SSD left side, delayed temporary facial weakness, ongoing severe headaches.

mwatto

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Re: Recommended medication and/or supplements before Radiation?
« Reply #1 on: February 16, 2023, 07:04:30 pm »
My specialist told me not to use ibuprofen re risk of brain bleed (panadoll ok) he also said no anto oxidants as the CK works by oxidation on the DNA of the lesion. Also melatonin is fine as thats a radiosensitizer. I think D3 ok. Boswellia also good for neuroinflammation I read and in a small trial was as effective as dexamethasone for swelling. But chat through maybe with specialist. I have been on low dose compounded melatonin for 4 years now 2mg troche or liquid. Abt to have 4th MRI next week.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

bri-82

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Re: Recommended medication and/or supplements before Radiation?
« Reply #2 on: February 17, 2023, 09:38:43 am »
You might look into intermittent fasting. It may make the tumor cells more sensitive to irradiation.

"Effects of Intermittent Fasting on Health, Aging, and Disease". The New England Journal of Medicine. 2019.

~BM
4.5 cm Right AN.
Sub-occip. Surgery 2011 @ Wash. Hosp. Center
Gamma Knife 2012 @ Wash. Hosp. Center
Translabrythine Surgery 2017 @ Johns Hopkins
Cyber Knife 2022 @ Johns Hopkins
Sub-occip. Surgery 2023 @ Johns Hopkins

mwatto

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Re: Recommended medication and/or supplements before Radiation?
« Reply #3 on: March 02, 2023, 01:58:49 am »
I sometimes take honopure for radiosensitisation. Lisa M had success with it.

 https://www.naturalmedicinejournal.com/journal/honokiol-research-review
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing