Author Topic: Facial Nerve Involvement  (Read 962 times)

Isla247

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Facial Nerve Involvement
« on: February 17, 2020, 01:12:59 am »
Hi everyone,

I was told last MRI that I have facial nerve involvement with my small AN. They aren't sure whether it is growing from the facial nerve or just attached to the facial nerve. I am wondering what - if any - symptoms people have had with their facial nerve being involved? The tumour I have is small (7-8mm) and it is growing - although at a fairly average rate (around 2mm every 6 months). I was talking to a friend a week ago and mid-conversation she stopped me and said that my left eye had drooped. By the time I arrived home, my eye looked normal but I thought I had better tell the doctor. I rang up today to find out what he thought and was told it had nothing to do with the tumour. I am so confused - yet again!

I would love to hear of other peoples experiences please.

Cheers

jami

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Re: Facial Nerve Involvement
« Reply #1 on: February 20, 2020, 05:00:04 pm »
Hi Isla247,

NO medical qualifications here... all I can say is that my care team (Neurosurgeon + Otolaryngologist + Oncologist) asked me to contact them if i have facial movement issues.

Others may have more to offer here.

Jami
Jami
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5/17/18: 2.7 x 2.2 x 2.1cm
8/12/18 right retrosigmoid craniotomy @UNC
8/15/18: 1.0 x 0.4 x 0.4 cm
3/04/19: 1.0 x 0.8 x 0.5 cm
4/23/19 Cyber Knife treatment
10/23/19 0.7 x 0.3 x 0.8 cm

Greece Lover

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Re: Facial Nerve Involvement
« Reply #2 on: March 29, 2020, 01:54:57 pm »
I also, am NOT a doctor. But my understanding is that, especially with a small tumor, the complication would come with treatment. It may not impact you for a while right now, but it would make surgery, for example, more complicated. Often the facial nerve receives trauma from during surgery. Mine did, and I had face paralyzed for a few weeks, but it all pretty much came back.
Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed not tumor.  No MRI for four more years!

 


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