thank you. I found the Acoustic Neuroma Facebook group, and have been quite active in there since diagnosis.
Retrosigmoid/suboccipital surgery 2/12/20 for 2.1 cm left AN. Loyola (Chicago area) with Dr. Prabhu and Dr. Marzo. I was glad to be referred here because Dr. Prabhu works closely with my gyn. oncologist and Loyola is convenient and familiar.
Everything is healing fine, and I've had no complications besides the common effects of the surgery.
SSD, though my hearing nerves are intact. Some balance issues with my vestibular nerve removed with the tumor, but I'm getting around with a hiking stick in case I lose my balance. Facial paralysis is at VI on the the scale, with no movement at all. That's been the hardest thing to deal with since surgery almost 4 weeks ago. I have some speech difficulties, and need to drink using a straw. My left eye does not close or blink causing eye strain and vision problems.
I had an evaluation with a physical therapist who specializes in facial palsy, confirming VI rating, and have appointments coming up for vestibular and speech therapy.
Doctors assure me that my face will improve over time, but I understand going from a VI to a I is not going be a realistic goal. At this point, I'd be happy if I could get my left 'blinker' to work since my eyes are causing so much discomfort and making it impossible to read or drive. I'm not going to be able to play my tuba anytime soon, if ever.
I wonder if anyone who has retrosigmoid approach hoping retain serviceable hearing, actually regains some if hearing is absent after surgery. Is the hearing nerve like the facial nerve, just in so much trauma that it isn't working now?