Author Topic: Symptoms Before Diagnosis  (Read 934 times)


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Symptoms Before Diagnosis
« on: August 04, 2019, 12:06:18 am »
Hi, I was wondering if any of those diagnosed with an acoustic neuroma had any of the following symptoms before being diagnosed, maybe even a long time before being diagnosed. Thanks!

1. Unilateral Tinnitus that decreased in volume over several months, but was/is 24/7

2. Tensor tympani syndrome/muscle spasms in ear (occasional fluttering/thumping in 1 ear when hearing some sounds or burping/yawning)

3. Decreased evoked otoacoustic emissions in 1 ear.


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Re: Symptoms Before Diagnosis
« Reply #1 on: August 04, 2019, 09:00:23 am »
I had tinnitus for long time before being diagnosed.  It was not high in volume and it varied.  At first I did not recognize it as tinnitus.  I thought I was hearing static.  I did not experience the other symptoms you listed.
Diagnosed Oct. 2015 - mild tinnitus, partial hearing loss - Right ear
1.5 cm x 0.8cm
Retrosigmoid Nov 2016 - Houston Methodist - Drs. Vrabec and Britz


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Re: Symptoms Before Diagnosis
« Reply #2 on: August 09, 2019, 01:29:11 pm »
Hey Enri,

1. Yeah I had something like this.  I had really intermittent tinnitus which appeared then completely resolved, then fluctuated for quite awhile.  The type changed a lot as well - started high frequency, then low frequency, then pulsatile.  Now, it's 24/7

2. Yes.  I also have this.  The fluttering / thumping is familiar with me.  Internal ear air pressure changes definitely cause interesting symptoms - in my case, gaze disturbances / a little disequilibrium.

3. I'm not sure what this means, sorry
2017 - Mild vestibular symptoms; lots of testing, misdiagnosis, and vestibular rehab
2018 - MRI w/o contrast: 4mm x 3mm x 2mm AN
2019 - MRI /w contrast: 5mm x 4mm x 3mm AN

My AN's location is inside the vestibule (rare) and not treatable w/o definitely going SSD; waiting and watching for now.