Author Topic: Sudden pain, pressure, burning/tightness on surgical side six months later  (Read 1635 times)

hapicap

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I had a mid-fossa approach last November and was doing well until a couple of weeks ago. I developed severe pressure and burning/tightness on the surgical side.    It is in the area of the plate above the ear and  to the back of it.    One of my neurosurgeons is saying that this is completely normal and some people experience delayed reactions. I contacted the second neurosurgeon today because the burning and pressure is too severe and they are going to check an MRI. Has anyone else experienced these symptoms?   It seems odd that they just appeared six months later.

harbormom

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Sounds like nerve pain.  ugh!  It's a trial and error approach to dealing with it.  I've had exploratory surgery for the pain--surgeon ended up removing the plate because of an adhesion and an artery was rubbing up against it.  He also cut and ablated a nerve and removed a keloid nodule from the original incision scar because it was rubbing and irritating things beneath the scar.  The surgery got rid of the pain, but only for 2 weeks.  The pain came back furiously.  I wish I had known about the high percentage of people that end up with post surgical nerve pain.  My only advice is to advocate hard for the surgeon to acknowledge your pain and guide you on who to see and what can be tried to relieve it.  if your surgeon suggests nerve blocks, definitely give them a try.  If they don't work the first time, don't be too upset.  Try them a second time.  The specialist will use the first time as a diagnostic tool and will most likely try giving them into a different nerve path.  For me, it was the second time where I found relief.  ps--the burning is a sure sign of nerve pain.

jrlf

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  • AN on left side. Retrosigmoid surgery Jan 2019.
I have a little of pressure/pain. Some tugging. It started about a 3 months after the surgery (retro). It spreads to the top of my head (for specific reason). Doc says it is due to all the nerves that are affected when opening for the surgery. It didn't subside yet. Didn't get worse either. Hoping it will go away eventually.
Cheers,
J
AN on left side. Retrosigmoid surgery Jan 2019.
CSF leaf fixed with second surgery 18 days after the first one.
Paranoid about having CSF leak again. :)
Back to work in 4 months.