Author Topic: Another new AN person  (Read 499 times)

HTownANGuy

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Another new AN person
« on: May 07, 2019, 11:50:30 am »
Hi everyone, I was diagnosed a couple weeks ago with a 6mm AN. I woke up one morning with severe hearing loss and scheduled an appt with my ENT. The ENT thought it was Sudden Idiopathic hearing loss but wanted me to get a MRI just incase. I did a hearing test day 1 and had severe hearing loss and started steroid injections into my ear.

Fortunately, I got in for a MRI very quickly and found my AN. I have was sent to a specialist at a large Cancer hospital here in Houston and met with a great team who specializes in AN's. Looks like the steroid injection helped somehow and moved me from severe to moderately severe hearing loss which is good.

I have done tons of research and have close family who are Physician Assistants to help out with understanding everything. I am 33 and have 3 small kids so becoming almost deaf in one ear has been difficult. I own my own startup company and dealing with this while trying to maintain my business has been difficult.  The dizziness and mind fog has hit me this week more than I expected.

Currently we are on a 3 month wait and watch to see if its growing and how my symptoms are. As of now I can't imagine living daily with dizziness for a long time.

My wife and I have a cruise planned for our 13th wedding anniversary in a couple months. Nervous how that will go, anyone managed one with AN?
4/23/19 - AN Discovery - 6mm - W&W
8/2/19 - MRI - AN growth to 9mm - Scheduling surgery
9/1/19 - Tentative Surgery

jami

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Re: Another new AN person
« Reply #1 on: August 11, 2019, 09:41:38 pm »
Hi HTownANGuy,

Sorry so long to reply!! Curious how things are going as it has been 3 months.

RE; the cruise, I say go for it, and dont worry too much. The single sided hearing has been my biggest adjustment. But I learn every day about more people who live with single sided hearing -- someone who works for me actually has since he was a child. It makes me rethink what accommodations we have give him.

-walk as much as you can
-avoid noisy venues if you can
-enjoy every minute, because nothing will be perfect!!

Jami
Jami
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5/17/18: 2.7 x 2.2 x 2.1cm
8/12/18 right retrosigmoid craniotomy @UNC
8/15/18: 1.0 x 0.4 x 0.4 cm
3/04/19: 1.0 x 0.8 x 0.5 cm
4/23/19 Cyber Knife treatment

HTownANGuy

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Re: Another new AN person
« Reply #2 on: August 12, 2019, 08:49:05 am »
Hey Jami,

Thanks for checking back in. We did go on the cruise and it was fine for the most part. I had a follow up MRI a couple weeks ago and my AN has grown 3mm in 3 months. So we have surgery scheduled for Sept 24th. So just mentally prepping for that!

4/23/19 - AN Discovery - 6mm - W&W
8/2/19 - MRI - AN growth to 9mm - Scheduling surgery
9/1/19 - Tentative Surgery

jami

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  • Posts: 88
Re: Another new AN person
« Reply #3 on: August 14, 2019, 09:46:40 pm »
Am glad the cruise was good!

And it sounds like you have a good attitude re: the Sept surgery. I just hit my 1 year surgery mark (TODAY)  and its amazing how much better things are today than last year. Many positive thoughts and wishes for you and your family
Jami
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5/17/18: 2.7 x 2.2 x 2.1cm
8/12/18 right retrosigmoid craniotomy @UNC
8/15/18: 1.0 x 0.4 x 0.4 cm
3/04/19: 1.0 x 0.8 x 0.5 cm
4/23/19 Cyber Knife treatment

 


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