I was diagnosed with right side AN in Feb 2012, when it was about .7cm x .4cm. Symptoms were hearing loss, unsteadiness, tinnitus. During watch-wait, I suddenly lost all hearing in that ear in April 2012, although the tumor hadn't changed much in size. I continued in watch-wait, but in Nov 2012 the tumor about doubled to 1.6cm x 1.0cm. They told me I had to choose a treatment. I chose radiosurgery, which was done in January 2013 at Geisinger in Danville, PA with Varian Trilogy. I was back at work the next day, and did a major project presentation at a client's offices two days after treatment.
About 3 or 4 months after treatment, my balance issues worsened somewhat, and that lasted for a couple of months before returning to "normal" for me. My right-side deafness is permanent, and 6 years post-treatment my balance issues are still bothersome but manageable, and my tinnitus has gotten worse. Like most AN patients, I have some fatigue issues and most days I take a short nap (usually 20 min or so) in the late afternoon, and then I'm fine for the rest of the evening. At my 18 month MRI post-treatment, my tumor had shrunk by about 50% (it was about .9cm X .5cm at my last MRI in Sept 2017).
At a recent annual check-up with my PCP, I mentioned my ongoing AN symptoms. I haven't seen an ear-nose-throat (ENT) specialist in several years, so my PCP referred me to one. My appointment is on Monday. I haven't seen this ENT before, so I'll be interested in what he has to say and how much experience he has with AN patients. I suspect that some of my current balance issues may be due to Benign paroxysmal positional vertigo (BPPV), which is a very common cause of balance issues and dizziness. I was diagnosed with BPPV during my initial evaluation for AN. The balance symptoms from BPPV and AN are very similar, but BPPV and AN are completely different conditions. Treatment of BPPV is simple and can be done by a PCP, ENT, or Physical Therapist. You can also learn how to self-treat for BPPV. So if you haven't been evaluated for BPPV, I suggest that you see an ENT or Physical Therapist. If you have it, as I did, it's easy to remedy.
Everyone's AN journey is different, but it seems that most of us learn to cope with our "new normal." It's interesting that a couple of other respondents to this thread mentioned hiking at Bryce Canyon Utah. I was there in 2016, and enjoyed hiking a few of the easy to moderately difficult trails. I used a walking stick, which gave me confidence. I had been to Bryce 25 years ago and hiked some of the difficult trails. I wouldn't attempt those today due to my balance issues -- there are limits you have to adjust and adapt to. But life goes on and it seems that most of us manage to keep doing the things we love in spite of our AN challenges. Best of luck on your journey.