Author Topic: Regrowth  (Read 156 times)

go4sherri

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Regrowth
« on: February 09, 2019, 07:05:17 pm »
Hi all, I had my surgery 6 years ago (almost exactly), it was translab approach and a small bit was left behind as it was too intertwined with the nerves. I have been going every second year or so for follow up MRI's and unfortunately I received a call yesterday that my little friend has grown. Needless to say, I'm pretty chocked up about it. I will be seeing my surgeon in a month as he is away, to talk details.
Has anyone here had experience with regrowth after translab surgery? I know everyone is different but I'm feeling really low right now.

Kathleen_Mc

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Re: Regrowth
« Reply #1 on: February 12, 2019, 03:35:54 am »
Yes I had a regrowth, but I had been told " we think we got it all". I think I was over 8 years post op when the regrowth was found and I didn't have it removed until a few years after that ( had it monitored and it was continuing to grow and didn't want gamma knife so went back into surgery).
It is most upsetting to find out the little bugger is still alive I know. Hopefully it will grow slowly and or stop all together. Depending on current size you have time to consider options.
Take care
Kathleen
1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)

pistol2282

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Re: Regrowth
« Reply #2 on: February 12, 2019, 09:20:00 am »
Hi Sherri,

I am currently going through a very similar story as you.  I had translab to remove a 4cm AN  in 2013 and 5 years later saw regrowth from the small piece left on my 7th CN.  I went through cyberknife 7 months ago.  It can be scary but for me I was doing what I had to do.  Not many options. I am happy to discuss more with you if you would like.  Just email me.