Author Topic: Newbie Newly Diagnoised  (Read 10820 times)

Dani

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Re: Newbie Newly Diagnoised
« Reply #15 on: November 25, 2006, 12:21:50 pm »
Sue,

Thank you for letting me get in touch with you, I will email you for your #.  I wasn't born and raised in Oakridge, although have been here for 5 years.  I was born in Portland, OR and moved to Eugene with my parents when I was 9 years old.  Lived there until I moved to Oakridge when I got married.  My husband was born and raised in Oakridge...so he's the one that knows everyone.  This town is still only a little over 3,000 people.  But that's fine.....less people, less hectic..........less stress.

Kathy,

Thanks so much for that link you sent.......it's really a good one.........for anyone that is thinking of GK, I found this site about a man that had one.....who did a journal and walks you through his whole treatment, with great photo's of each and every step or the procedure.  Who knows he may be a member here.  This is the link for anyone that wants to check it out.    http://www.rdoren.com/gamma/   

Jim,

I have really been in the dark about this AN and am learning a lot from this site.  I guess I really didn't know the extent of this tumor.  I had my MRI and got a phone call from my ear specialist the next day telling me what I had.  He said it was a nodule that was on the 8th or 9th cranial nerve....I can't remember which.  Just told me if it was him he would wait 6 months for another MRI and that he knew a really good brain surgeon he would refer me to if it come to that.  That's all the info I got on it.  So now that I'm finding out just what this really is I'm reconsidering........I still don't know what to do as of yet.  I think I would like to get some copies of my x-rays and send them into the ANA to have them checked out.  Is it possible to do that? 

Also for anyone that is interested in alternative medicine....while you "watch & wait"...Dr. Bernie Siegel has some bestsellers out...they were written some years ago and can be bought pretty cheap on bargainbook.com or half.com or Amazon. COM....can't remember where I purchased mine...I think bargainbook.com.  But anyway he was a surgeon and talks a lot about attitude and other was to distress and build up your immune system so that you can better cope with what's going on.  He deals a lot with cancer patients, but talks about anyone who has an illness.  I figure a tumor is a tumor.....cancerous or not....you can still apply anything that might help.  One book is called "Love, Medicine & Miracles", one is "Peace, Love and Healing" and another I have is "Prescriptions for Living".

Another person I heard about from a lady that has breast cancer is Dr. Lorraine Dae.  There is some controversy about her but a lot of good in what she has to say.......for any of those that like a more natural method.  She had a huge tumor on her chest, which totally went away with the things she did.  You might also want to look into that if your interested.  http://www.healthtreasures.com/lorraine-day-videos.html?gclid=CNzpr4fmpIgCFQRDYQodzXZgXA  I bought some of her Video's and her workbook.  So these are just a few of the things I have found that I'm trying to apply to my life, that can't hurt to try. 

Anyway, if anyone has any great links for me other then the one Kathy sent which was a really good one.......please let me know.  I'm doing all the research I can right now.

Thanks Bunches for all your help and advise,
Dani
Oakridge, Oregon
65 year old female
1.27cm, Diagnosed September 2006
Deaf in right ear, some tinnitus, numbness on my face close to my ear Currently "Wait & Watch", per doctors advise
If & When I need to have something done I've pretty much decided on GK.

Sue

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Re: Newbie Newly Diagnoised
« Reply #16 on: November 25, 2006, 03:04:47 pm »
Somebody will tell you, so it might as well be me Dani, but you can send all your information and films and scans and such to House Ear Clinic in Los Angeles for a free evaluation. Many people on here have had their surgeries done at House and speak very highly of it.  They also are now doing GK or CK.  I just don't know their address right off hand and maybe somebody else will post that for you.  Or you can probably google that and get the information.  They do thousands of these things, so I guess they know what they are doing, should you decide to go that route.

My e-mail is Collins30038@aol.com


Sue
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Obita

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Re: Newbie Newly Diagnoised
« Reply #17 on: November 25, 2006, 05:41:35 pm »
Dani:

A couple of links for you.  The AN world one shows how a AN grows and also has the link to House Ear in LA that Sue referred to.

http://anworld.com/
http://www.med.umn.edu/otol/library/aneuroma/  (this one is written by my surgeon - he is working on revisions as it is 6 years old)

Good luck in your research and let me know if you need anything.  Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Dani

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Re: Newbie Newly Diagnoised
« Reply #18 on: November 25, 2006, 06:15:02 pm »
Kathy,

Thanks so much for the links........they are very helpful.  For anyone that wants to send me a photo of a AN, my email address is dferrigno48@msn.com.  I'm starting to get a lot better idea of what I accually have.

Thanks to you all,
Dani
Oakridge, Oregon
65 year old female
1.27cm, Diagnosed September 2006
Deaf in right ear, some tinnitus, numbness on my face close to my ear Currently "Wait & Watch", per doctors advise
If & When I need to have something done I've pretty much decided on GK.

 


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