Author Topic: Newbie Newly Diagnoised  (Read 10568 times)

Dani

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Re: Newbie Newly Diagnoised
« Reply #15 on: November 25, 2006, 12:21:50 pm »
Sue,

Thank you for letting me get in touch with you, I will email you for your #.  I wasn't born and raised in Oakridge, although have been here for 5 years.  I was born in Portland, OR and moved to Eugene with my parents when I was 9 years old.  Lived there until I moved to Oakridge when I got married.  My husband was born and raised in Oakridge...so he's the one that knows everyone.  This town is still only a little over 3,000 people.  But that's fine.....less people, less hectic..........less stress.

Kathy,

Thanks so much for that link you sent.......it's really a good one.........for anyone that is thinking of GK, I found this site about a man that had one.....who did a journal and walks you through his whole treatment, with great photo's of each and every step or the procedure.  Who knows he may be a member here.  This is the link for anyone that wants to check it out.    http://www.rdoren.com/gamma/Ãhttp://www.healthtreasures.com/lorraine-day-videos.html?gclid=CNzpr4fmpIgCFQRDYQodzXZgXAÃ
Oakridge, Oregon
65 year old female
1.27cm, Diagnosed September 2006
Deaf in right ear, some tinnitus, numbness on my face close to my ear Currently "Wait & Watch", per doctors advise
If & When I need to have something done I've pretty much decided on GK.

Sue

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Re: Newbie Newly Diagnoised
« Reply #16 on: November 25, 2006, 03:04:47 pm »
Somebody will tell you, so it might as well be me Dani, but you can send all your information and films and scans and such to House Ear Clinic in Los Angeles for a free evaluation. Many people on here have had their surgeries done at House and speak very highly of it.  They also are now doing GK or CK.  I just don't know their address right off hand and maybe somebody else will post that for you.  Or you can probably google that and get the information.  They do thousands of these things, so I guess they know what they are doing, should you decide to go that route.

My e-mail is Collins30038@aol.com


Sue
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


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Obita

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Re: Newbie Newly Diagnoised
« Reply #17 on: November 25, 2006, 05:41:35 pm »
Dani:

A couple of links for you.  The AN world one shows how a AN grows and also has the link to House Ear in LA that Sue referred to.

http://anworld.com/
http://www.med.umn.edu/otol/library/aneuroma/Ã
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Dani

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Re: Newbie Newly Diagnoised
« Reply #18 on: November 25, 2006, 06:15:02 pm »
Kathy,

Thanks so much for the links........they are very helpful.  For anyone that wants to send me a photo of a AN, my email address is dferrigno48@msn.com.  I'm starting to get a lot better idea of what I accually have.

Thanks to you all,
Dani
Oakridge, Oregon
65 year old female
1.27cm, Diagnosed September 2006
Deaf in right ear, some tinnitus, numbness on my face close to my ear Currently "Wait & Watch", per doctors advise
If & When I need to have something done I've pretty much decided on GK.

 


anything