Hi, I am a 37 year old male recently diagnosed with an AN on May 8th. My symptoms were progressively louder tinnitus and slight hearing loss in the left ear. My wife and I just had our third "and final"
baby in April and I figured I'd go get a hearing check since we met our deductible already for the year...
I saw Dr. Perry in San Antonio for my initial visit. He wanted to be thorough so we did an MRI... and I'm the lucky winner of an AN. Yah! The size is 18mmx 15mmx 12mm. My tumor is located more outside of the IAC. I'm still learning all of the terms. The round mass is located in the slight bend near the brain. I've jumped in with both feet getting multiple opinions. Right now I have seen two teams made up of 1 Neurologist and 1 Neurosurgeon. Dr. Perry's counter part is Dr. Bogaev in San Antonio. I liked them both. They referred me to MD Anderson in Houston for my second opinion. While there, I spoke with Dr. Gidley and Dr. Raza. I had heard of Dr. Gidley from this ANA discussion forum but not anything about Raza. Raza looks to be new and was a young doctor. So far all the docs except for Raza suggested surgery. Dr. Raza in Houston (neurosurgeon) wanted to take the watch and wait approach since we only have one snap shot in time of the tumor size and don't know if it's growing. After talking with Dr. Bogaev in SA he agreed lets take another scan in August and put a plan together. I am torn, I like both groups of Dr.s. Any recommendations for either team? Dr. Perry and Bogaev sound like they have done tons (900 ish surgeries). I know Dr. Gidley has done a large number as well and Dr. Raza just specializes in skull tumors and sounds qualified. He said he does 2-3 tumor surgeries a week, (not just AN, other tumors as well).
Sorry to ramble. I'm just trying capture as much info as has been crammed in my head over the last few weeks. With three young kids at home (3yr, 1yr, and 4 week old) this has been pretty difficult to digest. I'm trying to keep my spirits up for my family and especially my wife. Talk about an overload for her.
Where to go from here? I have follow up appointments with both teams in August. Now to sit and wait for the follow up MRI to look for growth. I've been smoking my keyboard working the Google machine trying to soak up every bit of information as I can. I am a mechanical engineer and researching info is right up my alley, just wish this was for something else. On this positive side, it's not one of my children, and I think I can handle what ever the outcome. I just want to make the best decisions as I'm sure all do.
Anyone here is SA used Dr. Perry and Bogaev? Anyone use Dr. Gidley and Raza? Any specific questions you can recommend for my follow up appointments in August when we re-scan and look for growth?
Thanks in advance!