I am so glad all my posts helped you in some way! Right now - the beginning of your journey - is the hardest. I swear! The unknown is pretty scary when it comes to our health and future.
First, know that no matter what you choose, you are making the right choice for you. If you're like me, you spent hours (HOURS!) combing through and poring over posts on this forum. And one common theme you'll find is that most have to evaluate their choices, parse truth from bias, and decide for themselves.
Speak with doctors who focus on surgery, doctors who focus on both, and those that focus on CK/GK. Do not speak only with one doctor or hospital group. The recommendations you get will likely vary with the disciplines practiced. Heck, the size they measure your AN to be will vary to a degree, too! They all have their own methods. I know you don't want to let this drag on -- neither did I! But it's worth speaking to a few doctors. It'll wind up giving you peace of mind regarding how to proceed, and the knowledge you gather will give you confidence. My process didn't take long. I was diagnosed on February 13, and I think I scheduled my CK by mid-March.
What I am trying to say is, for sure speak to Dr. Chang or someone similar. I didn't get a referral for all but one of the doctors with whom I consulted. I just researched and contacted them on my own. Many consult via phone - you send them your MRI and that's that. Back when I reached out to Dr. Chang (which I did through his email that I found on the Stanford site somewhere) he emailed me right back! I sent him my AN size, and he got back to me with his success rates for that size AN.
From there, you can book a consult - he'll only consult in person. Or you can book a consult followed by CK. Which is what I did! I figured if something happened that alarmed me or backed me off of CK, I'd cancel and go home. But I met Dr. Chang and Dr. Hancock and I was a-ok with them and their data!
Things will be ok, Alex. One thing I repeated to myself over and over during the beginning was "this time next year, this will have passed." and it did. And I am ok. And you will be, too!
Please feel free to DM or message me any time. I am also more than happy to chat on the phone!