Author Topic: My AN Story %u2013 Sydney to Stanford CK  (Read 39784 times)

Gtmochi

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  • Posts: 96
Re: My AN Story %u2013 Sydney to Stanford CK
« Reply #75 on: October 16, 2023, 05:12:35 pm »
Hi Stella!

Oh my gosh, I just read your update -- what terrific news! Though you got it a while ago, you still must be over the moon. I am so happy for you, and glad to know you are doing great!

Jessica
Diagnosis 2/15/18, 2.5 cm right side AN, hearing 100%
CK at Stanford, 4/23-4/25/18, Dr. Chang and Dr. Hancock
6 month MRI: No change, central necrosis
1 year MRI: some shrinking and necrosis

SP

  • Full Member
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  • Posts: 180
Re: My AN Story %u2013 Sydney to Stanford CK
« Reply #76 on: October 17, 2023, 11:26:09 pm »
Hi Stella!

Oh my gosh, I just read your update -- what terrific news! Though you got it a while ago, you still must be over the moon. I am so happy for you, and glad to know you are doing great!

Jessica

Thank you Jessica !!!!
-- yes no news sine then,  is good news for me  ;D

be well
Stella
My AN Story – Sydney to Stanford CK
2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

mwatto

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  • Posts: 416
Re: My AN Story %u2013 Sydney to Stanford CK
« Reply #77 on: October 18, 2023, 02:05:01 am »
Hey Stella! Glad all still going well- me too!  :)
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing