Hi just wanted to give a quick update, just had my one year mri. Tumor is minimally larger. At GK it was 17mm, at 6 months 19mm and at 1 year 19.1mm. Showing some contrast differences not sure if that is necrosis or not. Before GK I had fatigue, balance issues, some hearing loss and dizziness. Since GK, I still have all the same issues, but a little more hearing loss and a little more dizziness. Will have a hearing test in a few weeks to determine how my hearing is. I am doing very well overall. So far I am blessed to not have any headaches, facial issues or twitching. I can still hike and bike ride and do all the things I used to do. I am slower though and I do use hiking poles when involved in strenuous hikes. I will have a followup in 6 months – so I will just be watching and living to the fullest extent until then.
Best wishes to all of you in this journey we are on!