Author Topic: Sudden Onset of Symptoms  (Read 717 times)

kends2020

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Sudden Onset of Symptoms
« on: December 13, 2017, 01:58:10 pm »
About 1 1/2 yrs. ago I woke up to find the right side of my face numb, hearing loss in my right ear and balance issues.  I thought I had suffered a stroke.  After about 4-5 months the numbness and balance issues went away.

Last month my current doctor decided to do an MRI to see in fact if there were any symptoms of a prior stroke.  Good news, no stroke, Bad news they found an Acoustic Neuroma.

I saw a specialist yesterday and asked if the symptoms I experienced 18 months ago could have been caused by the AN.  He said it is very rare and not likely.

In reading various posts I see occasional mention of sudden onset of symptoms like hearing loss.

I guess my question is to the members is it likely that AN could have caused the problems from 18 months ago?

Thanks

ColleenS

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  • Do not fear, for I am with you. Isaiah 41:10
Re: Sudden Onset of Symptoms
« Reply #1 on: December 14, 2017, 12:51:24 pm »
YES.
Surgery date 5/2/2017 @ Vanderbilt Translab approach with Drs. Haynes & Chambless. Love them :)
Success: removed 99.9% of tumor; no facial issues
Readmitted on 5/7/17 for CFL, had a lumbar drain inserted; CFL repair surgery on 5/14/17 and sprung on 5/15/17.

Kathleen_Mc

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Re: Sudden Onset of Symptoms
« Reply #2 on: December 17, 2017, 01:43:34 am »
Yes
I have experienced neurologists and neurosurgeon's telling me all kinds of things that I have experienced could not be related to my AN however it's very funny they disappeared (or only appeared) once the bugger was found and removed.....for example being told headache is not from AN, that AN's don't cause headaches.....yeah right !
I too had intermittent symptoms (come and go) long before diagnosis ( eventually they became more permanent) and have been told they weren't related to the AN yet they disappeared once the bugger was removed.
When you think about it, neurosurgery is relatively "new" in the history of medicine, particularly having people survive to tell the after effects so hey what do the doctor's know.
One wonders if there's ever been a neurologist or neurosurgeon who had one of these and what he would say to our symptoms that other doc's have poo-pooed.
Kathleen
1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)