Thank you again for replying to my endless questions. I sincerely appreciate you sharing your experiences in this journey, I've come to realize that this is a life changing diagnosis.
I'm very glad to hear that you're doing well, and that in retrospect you would make the same choices.
That seems to be an overwhelming area of concern for me, I don't want to look back and have regrets on the choices I make. It doesn't help that I was left totally disheartened by the surgical consult.
To be honest, I'm disappointed and a bit salty at the cookie cutter advice the doctor gave me. I feel that the first thing he should of done was bring up the MRI images and used it to explain the size (including volume) and placement and how those lend themselves to my treatment options.
What I needed to hear was all sides of the equation including the best options possible for preserving function of the facial, auditory and optical nerves long term.
I'm going for another consult with a different doctor and this time I think I'll be better prepared to ask more pointed questions to hopefully get better information. It definitely seemed that my history of migraines became too much a focus of the conversation instead of the an.
Your input really helped me to get a more rounded perspective regarding migraine involvement.
I've told both the ENT and the neurosurgeon that the pain from the an and the pain from the migraine are vastly different and that I can tell the difference between them, but because most doctors don't associate ANs with pain they don't initially feel the pain is a result of the an, just the migraine. I think anyone with long term migraine pain pre an would agree that they are definitely different. The ENT was actually familiar with it and gave it a name that I can't remember but he said it's rare, the neurosurgeon had a very strong preconceived notion that only a large an caused pain due to pressure against the bone. I think a tumor growing through the myelin sheathing of a nerve is more than enough cause for pain, it's reasonable and a reality.
Every time a read a thread from someone who's doctor tells them they're symptoms are not related to their an it makes me shake my head. I think no one knows your body better than you do, especially when you're the one living with it.
Anyway, thank you for sharing, and listening; your responses have been a great help to me!
I hope the bi crossed hearing aid is working out well for you and that you continue to do well on your journey.