Hello
I'm a freshly diagnosed AN sufferer, if that's the correct phrase? I'd love some input to help put some of my concerns to rest, if possible.
I started with a blocked left ear that would not clear even with the valsalva manoeuvre. Hearing seemed dull and I favoured the right ear when trying to hear something. A month later I had a cold and my world turned upside down. Any movement caused head spins and vertigo. I was trying to study and it felt like my head was filled with syrup. Tinnitus at a high pitch started. It took three times longer than normal to get through my notes. When the cold passed, the vertigo eased, but the fullness and tinnitus remained with occasional dizzy spells. I felt unsteady as if I'd been drinking. Not drunk, just two drinks too many. That's been constant for months now. I've had 4 attacks of vertigo in that time as well.
To cut a long story short, I've done a battery of tests, most normal, except for the Ecochg which was high. Initial tentative diagnosis was possible Menieres. Then I went to see a Neuro otologist who asked for an MRI.
So now, 6 months into this unsteady journey, they've found a 8x5mm AN on my left side. It's still small and the Neurootologist wants me to see a neurosurgeon to discuss options. I'd like to know what to look out for. He is suggesting Gamma Knife would be my best option while it is still small and before I suffer any permanent damage. I have a small amount of hearing loss at this stage and occasional facial twitches.
I am a professional pilot and obviously this has a serious impact on my job. I haven't been able to fly for 6 months. I'd like to know if there is anyone in a similar position and whether I have any chance of getting my pilots medical back.
I want to be realistic and I don't want to build false hope, so please don't feel you have to spare my feelings. Give me the facts please.
Thanks in advance from this dizzy blonde. Not drunk, I promise!