Author Topic: One year ago today. . .  (Read 2735 times)

Greece Lover

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One year ago today. . .
« on: May 09, 2017, 09:50:08 am »
there was a hole in my skull.  I had middle fossa surgery at the University of Iowa for a 1.2 cm VS.  One year later, things are great.  I can do pretty much whatever I want.  My balance is still not perfect, but it keeps improving and its never so much of a problem that I can't do something. Long bike rides; long drives; baseball with my kids; racquetball. I will have one year follow up MRI in early June, which will hopefully confirm good news.  It has not always been easy.  I've dealt with some anxiety, I have some problems with my eye getting blurry in the cold.  But, overall I'm extremely fortunate.  In the first few months I posted on here a lot, but then I stopped because I found it sometimes contributed to my anxiety, and there are a lot of people trying to justify their preferred treatment modality.  I also made some nice connections, especially with people who had surgery around the same time I did.  I have never regretted my choice and I look forward to a relatively normal life.
Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed no tumor. 
Five year follow up showed no tumor, so I'm in the clear.

MarkS

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Re: One year ago today. . .
« Reply #1 on: May 09, 2017, 02:57:38 pm »
Thanks for the update!
My surgery was 7 weeks ago today.  Still dealing with some dizziness, but it's good to hear that these things can continue to improve, even over the course of a year.  When I get better enough we'll have to play some racquetball :)
2.2 x 2.3 x 2.6 AN right side
Retrosigmoid 3/21/17
MD Anderson, Houston

Onisaki

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Re: One year ago today. . .
« Reply #2 on: May 11, 2017, 01:14:03 am »
Your information is very good.

Greece Lover

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Re: One year ago today. . .
« Reply #3 on: June 16, 2017, 07:48:44 am »
Update: I had my one year follow up MRI this week and everything was clear.  I don't have to go back for four years!  So happy!
Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed no tumor. 
Five year follow up showed no tumor, so I'm in the clear.

Jet747

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  • Posts: 58
Re: One year ago today. . .
« Reply #4 on: June 18, 2017, 08:45:01 pm »
Greece,

Good to hear you're doing awesome!

Hope everything continues well for you and your family!!!

Best,
Jet
RS Surgery May 2015

GK Radiation October 2015

https://www.anausa.org/smf/index.php?topic=21969.0