Author Topic: 1 year after surgery, is it ever going to get better?  (Read 9070 times)

LakeErie

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Re: 1 year after surgery, is it ever going to get better?
« Reply #15 on: March 25, 2018, 07:51:01 pm »
Rose, I forgot on my reply to your other message to say you need to see an ophthalmologist to rule out exposure keratitis, damage to your cornea from incomplete lid closure due to facial weakness. There are a number of steps that protect you from drying of your eye. Regular eye exams until the facial weakness resolves is important. Any ophthalmologist can do this, you do not need a specialist of any kind.
4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

Cheryl R

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Re: 1 year after surgery, is it ever going to get better?
« Reply #16 on: March 26, 2018, 01:59:24 pm »
Have you used any eye drops or gel?      These are all over the counter at drug and discount.    You do not need a drs order to get any.      There are heavier type for day use and gel for night time use.      Some have a preservative them which can bother some people but did not bother me.   Sounds you need these now and they may take a bit to get the eye feeling better too.            You do not need a dr to tell you first to use them.
                                                                   Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

voron999

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Re: 1 year after surgery, is it ever going to get better?
« Reply #17 on: April 16, 2018, 12:18:27 pm »
Thank you for coming back to post.  Your post really helped me a lot, and this is coming from someone who just got diagnosed yesterday but I don't know the size of my tumor yet.  I need another MRI of the ear.  It is scary.  I'm 47 and had never even heard of this type of tumor before the last 36 hours.

I am so happy that you found a new normal that sounds like a full and active life, and I can only hope and pray at this point that I will be so fortunate as well.

Golfguy49, my case is very similar to yours in very many ways.
My AN a bit smaller and is determined to be very slow growing to not growing.
This is based on one year MRI observation.
I would think you can afford to do the same (observe for 1-2 years) and determine the growth status.
Basically, IF the tumor is small and NOT growing, this is a good case for "wait-and-see" approach - the safest approach in my opinion.
Jan 11, 2016: 4 x 3 mm nodule in the left ......consistent with an acoustic neuroma.

Frederic

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Re: 1 year after surgery, is it ever going to get better?
« Reply #18 on: October 16, 2020, 02:41:27 am »
I just thought I would give an update and give some hope to others...

2 years ago I thought that this is as good as it is going to get but things did still improve considerably in the last 2 years.

My balance improved to most in the last 2 years, I still get those mornings that I wake up with an unbalance but these happen less frequent and recover in a couple of days where it used to take weeks.

The fatigue reduced slightly and my memory improved quite a bit, still not what it was before the operation but a lot better than 2 years ago, I still take a nap if I can when I feel tired as this always helped.

As to the eye watering, my nose running when eating and the eyelid not closing completely these have not improved but putting eye drops 6 times a day and eye gel for night time helps.

So yes, things still improve after 2 years, just be patient and don't be to hard on yourself, give your body the rest and time to heal...

Thanks to the forum and it's members, I found a lot of useful information here and much needed motivation to keep me going in the last 4 years :-)


Greece Lover

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Re: 1 year after surgery, is it ever going to get better?
« Reply #19 on: October 16, 2020, 11:37:23 am »
good to have this update. I too get eye watering, nose running, and sometimes excessive non-stop salivating when I eat certain foods.  so annoying!  Good luck!
Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed no tumor. 
Five year follow up showed no tumor, so I'm in the clear.

artima

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Re: 1 year after surgery, is it ever going to get better?
« Reply #20 on: October 28, 2020, 04:05:34 am »
Interesting. I'm also interested in this story. But cannot find information Good luck to read

 


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