Author Topic: 68 year old just diagnosed  (Read 1824 times)

gunns

  • Jr. Member
  • **
  • Posts: 73
68 year old just diagnosed
« on: April 16, 2017, 11:32:07 pm »
.
« Last Edit: July 18, 2017, 07:34:55 am by gunns »

Abetpds

  • New Member
  • *
  • Posts: 47
Re: 68 year old just diagnosed
« Reply #1 on: April 17, 2017, 06:58:20 am »
Hi I am 68 and was also diagnosed with a 2.7cm tumor on my left on March 28th.  Seeing a neurosurgeon on April 21.  My biggest concern is where I should do the surgery and how to determine where the best doctors are.  Any help in this regard would be most appreciated.
Regina

ColleenS

  • Full Member
  • ***
  • Posts: 106
  • Do not fear, for I am with you. Isaiah 41:10
Re: 68 year old just diagnosed
« Reply #2 on: April 17, 2017, 10:26:29 am »
I am also a newbie and you are correct - this forum is wonderful. I have educated myself immensely! Your surgical options are wonderful in California from what I have learned on here. Good luck to you and keep us posted.
Surgery date 5/2/2017 @ Vanderbilt Translab approach with Drs. Haynes & Chambless. Love them :)
Success: removed 99.9% of tumor; no facial issues
Readmitted on 5/7/17 for CFL, had a lumbar drain inserted; CFL repair surgery on 5/14/17 and sprung on 5/15/17.

djsunshine21

  • New Member
  • *
  • Posts: 10
Re: 68 year old just diagnosed
« Reply #3 on: April 17, 2017, 12:23:35 pm »
This is just my take from what I've read--you have to take into account both the size and the symptoms. Some symptoms may be relieved by treatment but other symptoms remain or worsen. Smaller tumors sometimes cause many symptoms and larger tumors sometimes have minimal symptoms. There is so much variance case by case. It has to be an individual decision based on your own research and your doctors' recommendations.

I was diagnosed 3 years ago and was tempted to have it removed right away. Now it looks as though the growth is rapid so observation is probably no longer the best choice for me. But I'm not sorry I had that time to get accustomed to the idea and research/think about how to handle what is coming.

ANSydney

  • Hero Member
  • *****
  • Posts: 607
Re: 68 year old just diagnosed
« Reply #4 on: April 17, 2017, 05:01:35 pm »
If the tumor growth is stable and your symptoms are manageable, observation is probably the best course. Nothing improves with surgery and there is significant risk of hearing loss or facial paralysis.

Abetpds

  • New Member
  • *
  • Posts: 47
Re: 68 year old just diagnosed
« Reply #5 on: April 21, 2017, 06:20:37 am »
I am still wrestling with a decision. Even tho my tumor is 2.7 cm my only discomfort so far is complete hearing loss in the left ear. Should I just wait and monitor year by year or should I go ahead with surgery. So far, I am leaning towards Keck Hospital in USC where they have a dedicated ANCenter.  My consultation with Dr. Freidrick was good and he suggested the Translab procedure and said that he'd probably leave a small portion of the tumor behind if there is any indication that the facial nerve is attached to the tumor.
I just do not want my postoperative to be worse that my preoperative conditon.  Any comments?
Regina

Cityview

  • Full Member
  • ***
  • Posts: 104
Re: 68 year old just diagnosed
« Reply #6 on: April 21, 2017, 07:02:09 am »
They have good results with translab and you've already lost your hearing so that's not an issue.
At 68 there's still lots of years left for it to grow. I think it's interesting that simultaneously there seems to be more younger people doing radiation and more older people successfully undergoing surgery.
If you're healthy enough now it might be a good time to remove it. Nobody knows what health problems might arise in the future to influence decision making.
Hope that helps?
Small AN
Successful watch and wait for over 4 years!

ANSydney

  • Hero Member
  • *****
  • Posts: 607
Re: 68 year old just diagnosed
« Reply #7 on: April 21, 2017, 06:32:08 pm »
Hi Regina,

With AN's, every path is a gamble (surgery, radiosurgery or observation).

“The best treatment is no treatment, if you can do it”. Dr Michael McKenna (https://www.anausa.org/resources/videos/support-group-video-library)

I'm going for a 2 year period of observation, with MRIs every 6 months, before considering the next step. That will give me five MRIs to get a good picture of growth. If there is rapid growth, intervention may be required, otherwise outcomes do not change by observing for 2 years.

With regards to age, a neurosurgical that I spoke to said that age does not matter. It's the general health that matters. Now they are somewhat related, but a healthier lifestyle would keep the fitness levels up which is good if you have to go to surgery and is good generally.

It's also good to read articles on vestibular schwannomas to get a better understanding. Three good ones to get you started are:

* “The Natural History of Vestibular Schwannoma” 2006. http://acusticusneurinom.dk/wp-content/uploads/2015/10/natural-history-of-vs.pdf

* “Active Treatment is Not Indicated in the Majority of Patients Diagnosed with a Vestibular Schwannoma: A review on the Natural History of Hearing and Tumor Growth” 2014 http://www.bhtinformatie.nl/pdf/ingrijpen.pdf .

* "Conservative Management of Acoustic Neuroma" 2006 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1502035/




ANSydney

  • Hero Member
  • *****
  • Posts: 607
Re: 68 year old just diagnosed
« Reply #8 on: April 21, 2017, 06:44:38 pm »
Regina, I forgot to ask an important question. How long have you had symptoms that can be attributed to an AN?

Abetpds

  • New Member
  • *
  • Posts: 47
Re: 68 year old just diagnosed
« Reply #9 on: April 22, 2017, 04:08:26 pm »
Hi AH Sydney,
The only symptom I have is total hearing loss on the left side. No dizziness, balance problems, ringing, numbness or tingling.
Regina

ANSydney

  • Hero Member
  • *****
  • Posts: 607
Re: 68 year old just diagnosed
« Reply #10 on: April 22, 2017, 04:58:23 pm »
How long have you had hearing loss and high bad is it?
« Last Edit: April 22, 2017, 05:21:22 pm by ANSydney »

Abetpds

  • New Member
  • *
  • Posts: 47
Re: 68 year old just diagnosed
« Reply #11 on: April 23, 2017, 07:13:12 pm »
My hearing loss must have started about 10 yrs ago and has been getting worse. Now I have no hearing in the left ear.
Regina

ANSydney

  • Hero Member
  • *****
  • Posts: 607
Re: 68 year old just diagnosed
« Reply #12 on: April 23, 2017, 09:10:01 pm »
Regina, given that you have had symptoms for a long time (10 years) that is good news. "tumor growth occurring beyond the fifth year of observation is very rare, but is, however, still observed" http://www.bhtinformatie.nl/pdf/ingrijpen.pdf

 


anything