Author Topic: Severe Ear Pain  (Read 2597 times)


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Severe Ear Pain
« on: January 09, 2017, 08:11:55 am »
Diagnosed with 8mm AN in August. I have been having ear pain for 9 months but last 2 months the pain has been severe  :'(. It never ends. I have seen my primary doctor and ENT and my ear looks great. Have any of you experience ear pain with AN?



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Re: Severe Ear Pain
« Reply #1 on: February 17, 2017, 08:35:34 am »
Yes!!! I don't have it constantly but it is almost like a radiating pain that feels like it goes from my jaw to my ear. There are times that I find myself holding my ear or laying on a heating pad. It really doesn't help at all but it is the only thing I can do. I'm sorry you are dealing with the pain as well and hope you find some relief.
Diagnosed 9/20/16 with 1.8 x 2.5 AN
Mild hearing loss, tinnitus, dizziness, facial pain
Follow-up MRI 3/14/17 w/ no growth; 10/9/17 pressing on trigeminal nerve causing pain
Treating w/ Dr. Tamargo @ Hopkins
Surgery scheduled with Tamargo/Chien January 9, 2018


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Re: Severe Ear Pain
« Reply #2 on: March 14, 2017, 01:22:10 pm »
mine is behind my ear and is super sharp and doesn't throb but does get weaker and stronger before going away.
Diagnosed 2014 a while after mom was also diagnosed with a slightly smaller AN on opposite side(we are not NF2)
4/14   2.0x2.4x1.7
10/14 1.6x2.2x1.5
6/15   1.5x2.9x1.6
8/16   2.8x2.2x1.5
Watch and wait may be prepping for surgery soon 6/17?
Mom of 5
16,12,5,3, 8m


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Re: Severe Ear Pain
« Reply #3 on: March 15, 2017, 08:33:39 pm »
Mine was excrutiating, on the bone right behind the ear. Was up for three days. Went away with a steroid course and has not returned.


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Re: Severe Ear Pain
« Reply #4 on: March 19, 2017, 03:39:37 pm »
My AN is 1.6cm I was just diagnosed 3 weeks ago. I've had ear pain and fullness and occasional deafness for the last year an a half (took a long time for my specialist to sent me for an mri) the pain goes from behind my hear to my jaw. I occasionally have a vibrating sensation... freaks me out, makes me think it goes throught growth spirts when that happens.


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Re: Severe Ear Pain
« Reply #5 on: March 19, 2017, 06:08:04 pm »
Hi Cali, welcome to the forum. Your follow up MRI will tell you the natural growth rate.