Author Topic: Balance/Vertigo after on Boat  (Read 3583 times)

Greece Lover

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Balance/Vertigo after on Boat
« on: April 18, 2016, 01:39:21 pm »
My surgery is scheduled for May 9 2016.  Middle Fossa.

Has anyone spent time on a boat and had trouble with extra dizziness after surgery?  I lead study trips to Greece and we sleep on a boat sometimes and I need to be able to drive and lead tours. thanks!
Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed not tumor.  No MRI for four more years!

Sheba

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Re: Balance/Vertigo after on Boat
« Reply #1 on: May 04, 2016, 09:55:10 pm »
Hi
I don't know about the boat scenario, but I attended the local Dallas Fort Worth ANA meeting last weekend, they invited a vestibular therapist to the meeting. 

She was really great explaining the mechanics of balance (the role of the eyes, the inner ear, and sensation in your joints - all of them factor in).  She showed how a good therapist can identify very specifically where your system is not quite working right, and give you a simple tailored exercise plan that takes just minutes a day, to "train your brain" to adjust for the new you. 

I think probably some people don't realize they need more time w/ specifically a vestibular therapist, or maybe there isn't a good one locally.  Anyway seems like they have a whole lot to offer.  But patients need to know about it and seek it out.  I think it is covered by most medical insurance.

Diagnosed 4/2016 1.4cm AN.  Mild hearing loss and tinnitus.
Removed 7/2016 at Keck, Drs. Freidman and Giannotta, Retrosig approach.  Lost hearing in AN ear, but no other negative outcomes.  Will investigate bone anchored hearing devices.

caryawilson

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Re: Balance/Vertigo after on Boat
« Reply #2 on: May 04, 2016, 10:28:32 pm »
This may sound unusual. I have had problems with seasickness my entire life. I'm 46 and love boats but always get sick.

After my surgery (7 and 8 nerves removed), I don't get seasick any more. Crazy. Life of seasickness. After surgery. No more.  My first sailing trip was five months after surgery.
4.5 cm, 17.5 hour modified retro surgery
John Hopkins: Lim / Carey
Complete Facial Paralysis
Facial Plastic Surgeon (amazing): Dr. Boahene

Greece Lover

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Re: Balance/Vertigo after on Boat
« Reply #3 on: May 05, 2016, 08:56:51 am »
Fascinating.  No more sea sickness.  A silver lining, I suppose.  thanks!
Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed not tumor.  No MRI for four more years!

Greece Lover

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Re: Balance/Vertigo after on Boat
« Reply #4 on: May 05, 2016, 08:57:57 am »
Thanks, Sheba, for this information.  I've got the name of the PT person at my hospital, and also someone recommended in my home town.  So, I'm planning on getting the therapy I need. 

Monday can't come quickly enough; excited to have it be done.

Vestibular Schwannoma 1.2 cm. Right side.
Middle fossa surgery at University of Iowa on May 9 2016.
Hearing saved.  Face is fine. Balance pretty darn good most days.
One year follow up MRI showed not tumor.  No MRI for four more years!

researcher

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Re: Balance/Vertigo after on Boat
« Reply #5 on: May 05, 2016, 10:24:45 am »
Good luck on your surgery. I will say a prayer for you. Take care!

InnerGrace

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Re: Balance/Vertigo after on Boat
« Reply #6 on: May 05, 2016, 04:30:58 pm »
Many prayers and good thoughts for your surgery, GL.  It actually makes me excited to know that your excited for Monday.  Not that I've read everything on this forum in a weeks time....(just diagnosed)...but you are the first person so far who I've seen excited.  Gives me hope.  Thank you.
Diagnosed 4/28/2016
2.4 x 2.0 x 1.9 cm AN
Symptoms:  Mild Hearing Loss, Mild Tinnitus, Mild Balance Problems, Possible Vision Issues, Some Vertigo.
Retromastoid Craniectomy 05/30/2016. UPMC Presby
Dr's Gardner and Hirsch
Left SSD. HB 6 Facial Paralysis.  Waiting for the nerves to wake up...