Author Topic: Tinnitus sound - please go away  (Read 24819 times)

mcrue

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Re: Tinnitus sound - please go away
« Reply #30 on: August 10, 2015, 03:47:57 am »
Here is an excellent article on Tinnitus:

http://emedicine.medscape.com/article/856916-overview#a1
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan

mcrue

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Re: Tinnitus sound - please go away
« Reply #31 on: August 17, 2015, 11:42:03 am »
Just to update.... This morning I sampled the WIDEX Dream "Passion" hearing aid which features "Personal ZEN" for Tinnitus. I have to pay an extra $650 ($500 for the upgrade + $150 for the remote control since it's a mini hearing aid).

The good news is my score went down from 90 (catastrophic) to 53 in just 2 weeks with the Resound Linx2 hearing aid. I hope my new WIDEX hearing aid will bring that score even lower.

My tolerance of the tinnitus has much improved since getting the hearing aid. Hopefully, my numbers will continue to decline as I habituate.

Total price is $3300 for the new WIDEX Dream "Passion" mini hearing aid, with "Personal ZEN" for Tinnitus feature.

I'm switching because I think the sound quality and hearing aid quality is better with WIDEX.

Resound uses "white noise" such as "crashing ocean waves," while WIDEX uses fractionated harmonic tones that never repeat.

Anyways, I will keep my fingers crossed in the hopes that I continue to progress well while acclimating to my new tinnitus journey.
« Last Edit: August 17, 2015, 11:44:34 am by mcrue »
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan

ANGuy

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Re: Tinnitus sound - please go away
« Reply #32 on: August 17, 2015, 02:47:59 pm »
I'm glad your ability to handle the tinnitus has improved so much.  My guess is that it is a combination of the technology and your positive attitude.  Probably, the + attitude would have gotten you there anyway, but maybe without the optimism brought on by the tech, you wouldn't have had such a positive attitude?  Who knows, I'm just glad it is working out so well.

I think I have an advantage in that I have had tinnitus my whole life, even as a small child.  I thought that ringing sound was normal and just never paid it much mind.  Now, the last few years or so, it is much more pronounced, but as long as I am doing something, anything really, I don't even remember I have it.
Diagnosed June 2014 1cm AN at 47 years of age.  Had fluctuating symptoms since 2006.    6 mos MRI (Dec 2014) showed no growth, MRI  in July 2015 showed no growth.  MRI Jan 2016 showed no growth.  MRI Aug 2016 showed no growth.  I'm gonna ride the WW train as long as I can.

mcrue

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Re: Tinnitus sound - please go away
« Reply #33 on: October 07, 2015, 03:15:46 pm »
For those who are suffering from "Catastrophic" Tinnitus (9 out of 10 on severity) then I highly suggest you contact Dr. Michael Seidman from Henry Ford Hospital in West Bloomfield, Michigan. Apparently he has developed some new and cutting-edge procedures for Tinnitus.  Dr. Seidman also offers many new options that aren't traditionally available.

He is an ENT surgeon and treats Acoustic Neuroma and Tinnitus patients. I met Dr. Seidman for the first time just four days ago at my first ANA Support Group Meeting. He is a genius. For example, there is one procedure Dr. Seidman performs that enables you to turn "on-and-off" your Tinnitus with a switch. You would have to inquire with him for the many different Tinnitus options available and see if your insurance covers it.

He also can inject a shot of Ketamine into your ear, which would be one of a few "off-label" procedures for Tinnitus.

As a former Catastrophic Tinnitus sufferer myself, I highly recommend a phone consultation to see what Dr. Seidman can do for your Catastrophic Tinnitus.  He said at the meeting that he has seen many suicidal Tinnitus patients at his office.

http://www.henryford.com/body.cfm?id=38441&action=detail&ref=1306
« Last Edit: October 07, 2015, 03:41:45 pm by mcrue »
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan