Two ANs, the left one is 33 x 37 x 41 mm?? That's massive isn't it? I am mostly deaf in that ear (key word being mostly, I can still hear deep sounds). Right one is much smaller, I have stable hearing on that side. I have had audiograms for years, and my left side hearing was stable (mild loss) for years, but it started going down a year ago and then reached this level 6 months ago. Headaches at times, but never too bad. No facial issues at all.
I am 18 years old, I started university, I get great grades (even with a hearing loss). I don't get it, should I feel horrible? I feel like everyone says to be worried about NF2, but now I'm worried that I'm not worried enough. When I started to lose hearing, the doctors said it would likely have no cause. But it does (as we found out). The internet says that people with NF2 can end up with all sorts of problems, but I guess the only thing that bothers me is I wanted to go to med school, but now I don't know. If I'm healthy enough to get through an internship, I could do something like radiology or pathology that has a much lower amount of patient interaction? That might be okay for someone with no hearing or in a wheelchair.