LesleyG, I have no answer for you, but to say Im in the same boat, maybe slightly different
My 'fella' is also small, but determined to show its might.
My symptoms started off as minor imbalance problems just half a minute here and there back in Jan, and slowly building up to being constant from about end of April onwards
Come June I had the snuffles for 2 days with no real ear involvement, jus the sore throat but 10days later had sudden deafness, I sure could hear properly at the dentists on the Mon, some distorted sound on the tues and deaf wed onwards
Now not two months later have facial paralysis. so I cant think it read that they are slow growing
the MRI 2 wks ago showed a 3.5 x 7.6 mm.
I am awaiting my first consultation, [ hospitals are slow here] so am having my second one, out of area next week
Yes its frightening, yes its not fair, yes why cant it remain rare and leave us alone.
As I tried to explain to the mechanic as why I wont be leaving the garage so can they check my car out promptly in a few days time.. I walk like a duck I look like a duck, I hear sounds like a duck, but Im still me inside..
I appreciate that I can read and see what others are fighting, and I do hope you find a course that leads you down the path to be doing the right thing for you..