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Author Topic: 2 years post-CK update  (Read 5209 times)

novagirl

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2 years post-CK update
« on: October 14, 2014, 06:57:08 am »
Hi All - just wanted to quickly give you an update on my second year post-CK tests:
- hearing - normal, no change since Cyberknife in Stanford in October of 2012
- AN - SHRINKING!!! yay. Pre-CK measurements: 15x14x10mm. Oct 2014 measurements: 12x6x5.

Feeling great!
Warm wishes to all.
Newbies - you can do this!
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Right AN 10 x 10 x 7 mm - dx 7/28/09; w&w for three years
CK at Stanford October 2012 - Dr. Chang and Dr. Soltys
Oct'12: 15 x 14 x 10 mm
Oct'14: 12 x 6 x 5 mm

keithmac

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Re: 2 years post-CK update
« Reply #1 on: October 14, 2014, 01:10:44 pm »
a great outcome!
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kejac

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Re: 2 years post-CK update
« Reply #2 on: October 16, 2014, 11:36:48 pm »
That's great news! Wow, that thing really reduced in size. That's most excellent, I wish you continued shrinkage.

kejac
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Tumor discovered 8/2012 10x5x5
WW 6 months tumor grew 12x6x6
CK treatment Stanford 3/2014
6 month scan swelled to 15x9x9
1 year scan tumor reduced to 14x7x6
2 year scan tumor reduced to 12x6x5
3 year scan tumor stable 11x6x5
5 year scan no change 11x6x5

Rash132

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Re: 2 years post-CK update
« Reply #3 on: October 19, 2014, 07:24:57 am »
Hi,
Glad to hear you are doing so well.
I'm also in the process of having Cyberknife.  May I ask how many sessions of CK you had? 
My hearing is also normal and I would like to give it the best chance to preserve it.
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novagirl

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Re: 2 years post-CK update
« Reply #4 on: December 05, 2014, 08:13:39 am »
Hi - sorry, I did not see your message. I had 3 CK treatments. I live on the East Coast (Northern VA) and had to travel to Stanford to get this done, so I had two days of prep and then 3 days of treatment. Hope your treatments were smooth and uneventful!
Logged
Right AN 10 x 10 x 7 mm - dx 7/28/09; w&w for three years
CK at Stanford October 2012 - Dr. Chang and Dr. Soltys
Oct'12: 15 x 14 x 10 mm
Oct'14: 12 x 6 x 5 mm

john1455

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Re: 2 years post-CK update
« Reply #5 on: December 06, 2014, 12:26:01 am »
Go girl!! I hope my results will be as good as yours!
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Diagnosed with 19x16x19mm cystic AN right side on 7/2013
MRI on 3/2014 showed AN increased to 21x20mm
right side 70% hearing loss, tinnitus, balance issues
CK at Stanford completed 3/21/2014 (3 sessions)
Dr Steven Chang and Dr Iris Gibbs

Echo

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Re: 2 years post-CK update
« Reply #6 on: December 06, 2014, 09:01:21 am »
Congrats and thanks for posting and sharing!
So nice to read about good outcomes.

Cathie
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Diagnosed: June 2012, right side AN 1.8cm
June 2013: AN has grown to 2.4 cm.
Gamma Knife: Sept. 11, 2013 Toronto Western Hospital

darkorchid12

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Re: 2 years post-CK update
« Reply #7 on: February 20, 2015, 10:37:32 pm »
Congrats on the great news!  I just got back from Stanford today and I think I will doing the Cyberknife as well. So much to process and decide about. If anyone would like to weigh in on possible negatives I would like to know.  I was told due to the location and size of my tumor that Cyberknife would be the best choice. 

One of my concerns if the short term aftereffects and what those can be?
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15 mm x 10 mm x9 mm 12/18/14
Working on possible CyberKnife @ Stanford
Diagnosed on incidental finding.
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