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Author Topic: The Son (chrissmom)  (Read 12334 times)

Dfcman

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The Son (chrissmom)
« on: October 08, 2006, 03:14:43 pm »
Hi.  My name is Chris.  And I had an Acoustic Neuroma.  Sounds like an AA meeting.  But I guess this is sorta what anonymous meetings are like, except this is an online one.  Previously, my mom came on here as Chrissmom She claims a lot of you might know me.  I'm really quite new at this forum thing and i'm still kinda learning. In fact, I don't really know how to do a lot of this.  Anyways, my mother has spoke of many of you...i've heard the name Chelsea, Taylor,  Maren, Crazy Cat mentioned, just to name a few.  I'll continue to make posts, replies and make comments on your posts. 

Today, I don't plan to make much discussion this being my first post.  I'd rather like to get to know you and tell you about myself later on...hopefully, throughout more discussions.  Also, most importantly my AIM screename is NotTodayMcVey...that is probably the best way to get in touch with me...i'm on just about all the time not to mention all crazy hours of the night.  As late as 5am and even a few dawns.  That's EST by the way.  Anyways, I am excited to see you online and can't wait to converse with you.  Later!
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Son of Chrissmom
23 Years Old
AIM is the best way to contact me
5.3 x 4 cm tumor removed by surgery(2 times)
Dr. Arriaga and Dr. Baghai Pittsburgh Allegheny Hospital
Post Op as of 7/20/06

Patti UT

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Re: The Son (chrissmom)
« Reply #1 on: October 08, 2006, 04:17:36 pm »
Welcome Chris,
  we have been following your AN journey through your Chrissmom posts. I am glad you are feeling well enough to finally post. We are sorry you hqd to join this group, as having the freaded AN is no pick nick, but we are happy you are here all the same. You will find the folks on this forum to be very helpful, knowledgable, kind ,and funny as well. Please fel free to post any question you may have about what you are going through or wondering about as relates to your AN journey.
Look forward to hearing more from you. take Care and most importantly, try to stay positive.

Hugs
patti UT
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2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

Dfcman

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Re: The Son (chrissmom)
« Reply #2 on: October 08, 2006, 04:26:45 pm »
Thanks for your reply Patti and your welcoming of open arms.  My mother told me that I should register on here so I can learn and meet others who have shared a similar experience.  Thanx again. 
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Son of Chrissmom
23 Years Old
AIM is the best way to contact me
5.3 x 4 cm tumor removed by surgery(2 times)
Dr. Arriaga and Dr. Baghai Pittsburgh Allegheny Hospital
Post Op as of 7/20/06

lmurray69

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Re: The Son (chrissmom)
« Reply #3 on: October 08, 2006, 04:54:49 pm »
Hi chriss, My name is Linda and I am fairly new too.. There  is a lot of wonderfull people on here and they too are here  all hours of the day and night. I had radiation and now I am headed to house for surgery. Hopefully to remove what is in there.. Feel free to write and ask as ,many questions as needed. If I dont have the answers .I am sure someone will..Good Luck Linda
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radiation feb 05, gammaknife, tumor is 1.2x0.08/ surgery Nov 1st 2006 Dr House/Swarts/

Sue

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Re: The Son (chrissmom)
« Reply #4 on: October 08, 2006, 05:01:52 pm »
Hi Chris!!

Boy, we were all worried about you and Chelsea!!  Gads, you kids had us going this summer. I was so sorry that you had to go through all of what you went through for those months, but am so happy that most of it is behind you now and the road to recovery is looking good.  I just couldn't imagine what it would be like to have my son go through what you endured.  We moms identified with your mother, that's for sure.  Anyway, welcome to the forum and so glad you are doing okay.  It's great to hear from you personally.   :D

Sue in Vancouver
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


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The only good tumor be a dead tumor. Which it's becoming. Necrosis!
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Jeanlea

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Re: The Son (chrissmom)
« Reply #5 on: October 08, 2006, 05:07:19 pm »
Hi Chris,

Good to hear from you.  Glad that you are well enough to post for yourself.  I've been following your story for quite awhile.  You certainly have been through a lot.  I have a daughter a year younger than you.  It was much easier for me to go through this whole experience than to have had to watch her go through it.  So happy to hear that you are doing better now.  You sound like a strong person.  :-)

Jean
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

Obita

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Re: The Son (chrissmom)
« Reply #6 on: October 08, 2006, 05:29:06 pm »
Well hello Ritasson!!!

Your mom told us you might come aboard.  Welcome.

So glad you are on the mend.  How are you feeling?  You had way too much to deal with and so did your mom. Tell her we all say hi.

It sounds like you are glued to your PC?  I don't know what I would have done without mine after surgery. I had to have something to do all those months.

See ya around the forum Chris.  Kathy from Minnesota
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University of Minnesota - Minneapolis
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matti

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Re: The Son (chrissmom)
« Reply #7 on: October 08, 2006, 05:42:24 pm »
Hi Chris - Glad to finally meet you! I have been following your story from the beginning and watched your amazing progress and I hope you are still doing well. You and Chelsea sure gave us all quite a scare this summer. Hopefully we will see Chelsea sign on soon as well.

Are you back in school? Sounds like you keep the same sleep schedule as my son LOL Don't know how you do it and function all day, but then again I'm a heck of alot older >:(

Take care and say "hi" to your mom. She is WONDERFUL, but I think you already know that ;)

Cheryl

I am a "chris"mom too, my chris is 23.
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3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

krbonner

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Re: The Son (chrissmom)
« Reply #8 on: October 08, 2006, 06:09:18 pm »
It's nice to "meet" you, Chris.  Like many others, I followed your story through the summer and am thrilled that you're feeling good enough to join our community.

((hugs))
Katie
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diagnosed June 2005
2.3cmx1.6cmx1.4cm left AN
translab Sept 13, 2006; Drs. McKenna and Barker in MA (MEEI/MGH)

Dfcman

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Re: The Son (chrissmom)
« Reply #9 on: October 08, 2006, 10:18:00 pm »
Wow! Thank you all for your replies...u were all so kind.  I guess when you or someone you love has that kind of pain and suffering, you can really understand what one goes thru.   The realization that things could be worse, was a very strong coping skill for me.  Thank You all for being so (and I really emphasize) nice.

I hope my mom didnt make it sound so god-awful.  I had good doctors and good nurses at my side all the time.  It made me feel alot more confident about things too...and that's really important.  Plus, I was on alot of drugs so I really dont rememeber much.  I know ripping the band-aids and IVS  from the hair on my skin was probably the most hurtful thing.

Thanks again

Chris
« Last Edit: October 09, 2006, 08:29:54 pm by Dfcman »
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Son of Chrissmom
23 Years Old
AIM is the best way to contact me
5.3 x 4 cm tumor removed by surgery(2 times)
Dr. Arriaga and Dr. Baghai Pittsburgh Allegheny Hospital
Post Op as of 7/20/06

marystro

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Re: The Son (chrissmom)
« Reply #10 on: October 08, 2006, 10:40:58 pm »
Hey, Chris,

Welcome to the special family here.  I too have followed your story.  Glad you are feeling better.  You have a lot of "uncles" and "aunts" on this board already.  Stay positve (sounds like you are already)!  You have a great mom!!

Mary
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Mary
July 2006 - 22 x 18 x 20 mm
August 2006 - CK at Stanford by Dr. Chang/Dr. Soltys
February 2008 - 19 x 15 x 20 mm and stable
May 2009 - 17 x 14 x 18 mm

Taylor

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Re: The Son (chrissmom)
« Reply #11 on: October 08, 2006, 11:20:28 pm »
This is my life... it's not what it was before

I rip off songs too much
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Taylor
Translab/4.8 cm AN on right side removed 2/3/06
St. Louis Children's Hospital (next to Barnes-Jewish)/ Jeffery Leonard - Neurosurgeon
Cross-facial nerve graft with muscle transplant
Bad coordination on right side - constant pins-and-needles sensation on left side
21 years-old
Illinois

ppearl214

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Re: The Son (chrissmom)
« Reply #12 on: October 09, 2006, 07:36:21 am »
Chris,

I cannot begin to tell you how very thrilled I am to see you posting here.  As everyone has noted, we have been cheering you on (and Taylor and Chelsea) all summer, sending wishes and prayers and huggles for everyone's speedy recovery.  To have you post here brings me joy in knowing that you are moving along well and to read your words brings me lots of joy.  You are now a member to a very exclusive "family" and this family is here to help you, listen to you, loan a shoulder and our good ears and yes.... give kicks and giggles, when need be. 

Please give your mom a BIG huggle from me but most of all.... I'm truly overwhelmed to hear your words and to see you here and to know that you are doing terrific.  Please remember... "day by day, inch by inch"... and we're all here to help you along. :)

Filled with joy,
Your cruise director of this wacky, fun ship!
Phyllis
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Pembo

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Re: The Son (chrissmom)
« Reply #13 on: October 10, 2006, 05:53:22 am »
Welcome Chris!!! It's great to here from you. The journey after An surgery is long and filled with lots of ups and downs. We're here to help! Stay strong...........
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Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

Jim Scott

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Re: The Son (chrissmom)
« Reply #14 on: October 12, 2006, 03:46:46 pm »
Welcome Chris!

Many of us are familiar with your AN surgery - and complications - thanks to your mom and her many posts about her brave son.  We're certainly pleased to see you 'out of the woods' and able to communicate with us on this message board.  Keep getting well, post as you're able and keep us informed as to your progress.  You're one of the 'family', now.  ;)


Jim
« Last Edit: April 10, 2009, 02:48:27 pm by Jim Scott »
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.
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