Beth, yeah that's true. Once you know it, you can check your body periodically.
Though, as little as they can be, acoustic neuromas can be tough to remove
On the other side, from the expetiences I have read, if you manage to have them treated succesfully, most of the job is done.
I mean, you can grow tumors in your spine, but they are much easier to take out, and (I pray what I am saying is right) meningiomas in the brain are usually only a problem of poor kids who have NF2 since they're very young. We should feel so lucky if we think bout those little creatures.
MARK, I'm glad to hear doctors already suspected the presence of the ANs even before they were 2 mm big.
This means that, if I happened to be another one, it would be maybe smaller than 1 mm, since they cant see anything.
Though, I guess it largely depends on the quality of the equipment they scan you with.
I hope you will live long enough to have to consider your neuromas as a problem
but yeah, they're tiny so dont worry at all.
Can you guys satisfy my curiousity? Why do you talk about neuromas in centimeters,is that because in medicine you use the metrical system, or are you just being kind to the rest of the world reading you?
Sorry for typos (writing from cell phone) or for bad English.
Good thing about this disease is I am visiting lots of cities to have my rmn seen by the best surgeons.
You guys... I live in Italy and never been to Rome. Will go next week for my AN. WHAT A SHAME.
Ciao and be strong!