Hi, my name is Alecia and I was recently diagnosed with an acoustic neuroma (6/13/14--Friday the 13th). I was all set to receive GK in Pittsburgh with Dr. Lunsford until I spoke with my sons ophthalmologist who is in Boston. He recommended that I see a Dr. Michael McKenna at Massachusetts Eye and Ear Infirmary in Boston because he feels that proton beam therapy is the best treatment. A little bit of history...my son has glaucoma which was diagnosed at birth. He has had numerous surgeries and I LOVE his ophthalmologist, which is why I am researching the proton beam therapy now. I don't think he would recommend Dr. McKenna to me if he did not think Dr. McKenna was a stellar physician. Anyway, my concern with proton therapy is that there is not a lot of published research available with the stats and results for ANs (at least not that I have seen). I should note here that my tumor is 10x5x5 mm. My question to all of you is .... does anyone have any experience with Dr. Michael McKenna? I know some have posted about their proton beam experience and I will contact those who have said it's ok. Are there any others out there with any input on proton beam therapy?
Thanks in advance,
Alecia