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Author Topic: Gamma Knife: Pittsburgh or Michigan?  (Read 12059 times)

Petrone

  • Jr. Member
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  • Posts: 71
Re: Gamma Knife: Pittsburgh or Michigan?
« Reply #15 on: July 15, 2014, 09:22:27 pm »
Hi Kat From Indiana,

Your inner strength and great perspective will serve you well through this, and, I'm guessing, any other curves life throws your way.  Thank you for being an inspiration for others on this forum! 

All the best,
Petrone
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1.4cm diagnosed 3/2010
W&W until 1.8cm by 10/2012
GK performed 4/17/2013 at Froedtert in WI
2 years after GK - 1.6cm
3 years after GK - 1.4cm

cmoncj

  • Newbie
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  • Posts: 1
Re: Gamma Knife: Pittsburgh or Michigan?
« Reply #16 on: July 19, 2014, 06:01:12 am »
Hi Everyone, I am 43 and recently diagnosed with bilateral AN or vestibular Schwannomas also known as NF2.  I'm having a difficult time choosing surgery or radio.  Both AN's are under 1.5mm and hearing is good on both sides with the right a little less.  Ipthese forums make it difficult to know everyone's diagnoses so forgive me...  Should I at least consult with Pittsburgh.  I live just north of Detroit in michigan and have seen dr. Babu from michigan ear institute who has been great through all this.  I have results going to house clinic in Los Angela's CA and DR. Bradley Welling massachuttes ear and eye infirmary.  This week I meet with my neurosurgeon and should hear back from house and mass.   My question would be is gamma safe for long term hearing preservation and cancer?  I too have been researching like crazy and reading case studies and surveys with no conclusions.  Not positive I want to go the surgical route and thought I would seek out as much information as possible.  Thank you everyone in advance.
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Diagnosed June 2014. Bilateral AN, consistent with NF2 not confirmed with gene test. Right 6.7mm x 4.0 mm, left 11.1 mm x 7.4 mm.  Deciding on approach??

cathyroe

  • Jr. Member
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  • Posts: 67
Re: Gamma Knife: Pittsburgh or Michigan?
« Reply #17 on: July 21, 2014, 05:33:59 am »
Hi Kat, I am so happy to hear this! My appointment with Dr. Lundsford is next week, July 29. Thank you for your positive news and outlook. It sure helps.
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11/02/12  Diagnosed with AN  11mm X 5mm
05/29/13  MRI reports no change, stable
11/20/13  MRI reports 13mm X 7mm X5mm
5/20/14 MRI reports 14mm x 8 mm x 6 mm
7/29/14 GK at UPMC Lunsford. Now a Postie Toastie
1/14/15 Six Month MRI growth. 16mm X 8 mm
11/09/15  16 mm X 9 mm
9/15/16   17 mm x 11 mm x 8

Kat From Indiana

  • New Member
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  • Posts: 36
Re: Gamma Knife: Pittsburgh or Michigan?
« Reply #18 on: July 21, 2014, 07:00:45 pm »
Cathyroe,
You helped me too!  There is another newbie who had GK on the same day as youself.  Suzannelowensohn is from Colorado and is having GK on the 29th also.  Maybe send her a message?  Best Wishes for a very good experience!  Gave them 5 out of 5 stars. 
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Diagnosed 3/29/14 Right Side AN 8mm x 3mm x 4mm
GK UPMC 6/13/14
MRI 12/03/2014

Sheryl

  • Sr. Member
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  • Posts: 460
Re: Gamma Knife: Pittsburgh or Michigan?
« Reply #19 on: July 22, 2014, 03:06:13 pm »
Kat - great news - hope it continues.  Thanks for the followup.
Sheryl
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W
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