Author Topic: HOW COMMON IS FAILED RADIATION?  (Read 4401 times)

sandyinwisconsin

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HOW COMMON IS FAILED RADIATION?
« on: March 16, 2014, 04:41:18 pm »
I'm just curious if any of you long-term members know approximately how many people had their AN radiation fail?

My radiation doctor is in his 50s, and he said in his lifetime, he's had one SRS failure.  Mine was 27 treatments.

Thank you - Happy St. Patrick's Day  :)

Sandy
1 cm AN deep in the boney canal.  Treated with 26 treatments of radiation in December, 2013.  Please pray with me that this worked.

arizonajack

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Re: HOW COMMON IS FAILED RADIATION?
« Reply #1 on: March 16, 2014, 05:57:25 pm »
3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

mk

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Re: HOW COMMON IS FAILED RADIATION?
« Reply #2 on: March 18, 2014, 07:37:17 pm »
I would easily count at least 5-6 forum members (including myself) during the years that I have been following the forum, plus a few others outside the forum.

Marianna
GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

Trish G

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Re: HOW COMMON IS FAILED RADIATION?
« Reply #3 on: March 20, 2014, 08:53:51 pm »
I just had an appointment with my neurosurgeon this week and asked him how many tumors continue to grow after FRS  He said 3- 5  %.
« Last Edit: March 20, 2014, 08:57:34 pm by Trish G »

PaulW

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Re: HOW COMMON IS FAILED RADIATION?
« Reply #4 on: March 21, 2014, 12:33:33 am »
The statistics vary depending on a number of things.
Small VS's under 1.0cm have around 99% success rate

Tumours that grow quickly, tumours larger than 2.5cm
Tumours that have regrown after surgery, people with NF-2
All these are factors with poorer success rates.
Have a few factors together and failure rates could be 20%

It should be noted that a large percentage of radiation failures 10-15+ years ago can be attributed to less accurate targeting of the tumour and incomplete tumour coverage.

Please check these statistics. Its all hiding at this website

www.pubmed.com   
10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

sandyinwisconsin

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Re: HOW COMMON IS FAILED RADIATION?
« Reply #5 on: March 22, 2014, 04:48:18 pm »
Thanks everyone : )

Trish, I think you had the same treatment as me.  Do you mind sending me a PM at

sandyinwisconsin.  I'm not able to send you one. 

Sandy
1 cm AN deep in the boney canal.  Treated with 26 treatments of radiation in December, 2013.  Please pray with me that this worked.

joanna_an

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Re: HOW COMMON IS FAILED RADIATION?
« Reply #6 on: March 23, 2014, 07:21:21 pm »
The statistics vary depending on a number of things.
Small VS's under 1.0cm have around 99% success rate

Tumours that grow quickly, tumours larger than 2.5cm
Tumours that have regrown after surgery, people with NF-2
All these are factors with poorer success rates.
Have a few factors together and failure rates could be 20%

It should be noted that a large percentage of radiation failures 10-15+ years ago can be attributed to less accurate targeting of the tumour and incomplete tumour coverage.

Please check these statistics. Its all hiding at this website

www.pubmed.com

Paul, can you find me an article that says that fast growing tumors are more likely to fail radiation treatment? Mine grew 4mm in 4 months so it's growing faster than it normally should, but my radiation oncologists gave me 95% success rate and they didn't mention my "fast" growing tumor as an issue at all.. I was actually researching this myself cause I thought it could be an issue, but I couldn't find anything relating fast growing tumors to failed radiation treatment..
31 years old female
Left AN 18x16x13mm diagnosed on the 17th of October 2013
21mm on the 19th of February 2014
Hearing loss, tinnitus
SRT 12th March 2014