Hi all! :)I'm so relieved that I found this. I need a list of other AN specialists that will respond to me! I was referred to Dr. Bachous at Swedish Hospital in Seattle this past Monday for a large AN. They said they would get back to me yesterday and I kept calling today and I still didn't hear. My symptoms are really bad: vertigo, fatigue, I have terrible nerve pain that comes and goes in my right ear, etc, and I am so ready to get this taken care of. I did meet with the ENT that does it here, and he does it in tandem with a newer Neuro surgeon. My family is not excited that it's two doctors performing the surgery here in Boise, and they did a total of 2 in the last year. My AN is about 3cm, so I was told that surgery (it needs to be done soon according to the ENT because of the position on my vestibular nerve) is the only option.
I went to ENT's (in the past), doctors, had sinus surgery, got tons of antibiotics, ear drops, etc all for what they thought was a "bad ear" with a "small ear canal". It wasn't until I had an audiologist test (I'm pretty much deaf now in that right ear)that he referred me to a PA that actually sent me in for an MRI on Monday. They called me an hour later with the results. I've been in total shock, unable to sleep ever since.
So I'd love to hear your story, advice, doc advice, anything at all.
I'm going through waves of being OK and tears- is that normal? I'm active, have a great job, am 36 years old,have a small family: a husband who is freaking out, and a soon to be 8 year old boy who's just fine. I think my mom, who's a CCRN, is going to go with me to Seattle once we book a surgery date/ time but I'm open to other options as long as they takes Blue Cross . This doctor in town wants to hurry because of it's size, and where it's placed, and also because my symptoms have really gotten bad in the last year.
Thank you so so much for being here- I look forward to more discussion,advice, networking and support!