Author Topic: Facial question  (Read 2816 times)

william5822

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Facial question
« on: March 06, 2014, 06:00:33 am »
My husband is 13 weeks post op.
He told me the other day that he had this sensation on the side of his head/face (paralysis side) that felt like his skin was crawling. Is this a good sign?
So far he has not seen any movement or improvement but gets that crawling sensation every once in a while.
I have no idea what to tell him and the surgeons really don't have a clue from what we can gather in regards to the paralysis.
Just trying to give him a glimmer of hope if I can :)
3 cm AN removed 12.3.13 - 12 hours in surgery
Emory Healthcare Midtown Atlanta
Left Side facial paralysis - intact facial nerve
1.31.14 - Gold weight implant and tarsal flap
2.17.14 RETURNED to work :)
10.6.14 - 10 month MRI shows stable

LakeErie

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Re: Facial question
« Reply #1 on: March 06, 2014, 06:37:02 am »
The sensation may be a good sign, but who knows at such a short time from surgery? Yes, to most people 13 weeks seems like a long time, but in terms of cranial nerve recovery, it is not long at all. While I did not have facial paralysis, I did have vocal cord and swallowing muscle paralysis/paresis. It took me eight months to begin to see any improvement in my voice and swallowing and I was still improving gradually at 13 months. I am close to normal at almost 30 months from surgery. Patience is required. Good luck.
4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

saralynn143

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Re: Facial question
« Reply #2 on: March 08, 2014, 08:56:39 am »
I had that sensation, like a "can of worms" under the skin, just prior to seeing movement. First, next to my nose, then at the corner of my mouth, then further out. I think it's the sensation caused by regrowth of the nerve, and it is generally (but not guaranteed to be) a good sign.

Best to your husband.
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13