For whatever its worth, I was told the 50-60% chance of hearing retention was 10+ years out, with a 75% chance of serviceable hearing 5 years out. Whether that's optimistic or not I have no idea. I can only hope that's Lunsford's best guess based on his clinic's outcome data and not used car salesman talk. Another argument in favor of GK- if I lost serviceable hearing but still had some nerve functioning, I could boost hearing in that ear with a conventional hearing ear (which obviously would not be possible with translab).
I hadn't heard anything about risk of exponential cyst growth following GK but the scenario you describe sounds horrible. Did that happen to you?
I asked Dr. Lunsford about debulking and radiating the remainder because no one had suggested that and I was also wondering about it. Dr. Lunsford said this approach would be useful if someone had mass effects, such as headaches or vertigo caused by intracranial pressure due to the tumor. In this case the only way to get rid of the mass effect symptoms is to do surgery to alleviate the pressure. If someone doesn't have mass effects, even if the tumor is large, there is no need to do surgery and you can just radiate the whole thing.
Thanks for listening! Its helpful to write things out instead of getting lost in thought.