Author Topic: Yale University Acoustic Neuroma Study  (Read 6753 times)


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Yale University Acoustic Neuroma Study
« on: June 14, 2013, 02:28:48 pm »
Yale University Acoustic Neuroma Study

Dr. Elizabeth B. Claus from Yale University launched the the collection of data from acoustic neuroma patients at our National Symposium in Los Angeles to initiate the first AN causation research study of this type.  The goal of the study is to determine whether or not there are possible genetic risk factors that cause an AN.   

The first phase of the study is only the collection of data, which includes a questionnaire and a saliva sample from acoustic neuroma patients.  After the data collection is completed, she will seek additional funds to analyze the data.

ANA has awarded a grant to Yale University to assist
in the funding for this first phase of data collection.

Progress Report:  400 registered to date with 250 totally completed.

Note:  Many Local Support Group Meetings will provide the opportunity for the group to work together to take the survey and sample collection.  Also there is a new Visitor option on the survey for those who want to review the survey in advance.

What is an acoustic neuroma?
An Acoustic Neuroma (or Vestibular Schwannoma) is a tumor of the lining of the nerve that controls hearing and balance.

What is the goal of the study?
Little is known about risk factors for acoustic neuroma. The purpose of this study is to discover why some people develop acoustic neuroma while other people do not.

Who is organizing the study?
The study is organized by Dr. Elizabeth B. Claus from Yale University.

Who can enter the study?
Any person over the age of 20 years with a diagnosis of acoustic neuroma.

What are study participants asked to do?
There are two parts to being a study participant: 1) an online interview with questions on medical and family history, and 2) a saliva sample that will permit us to look at changes in DNA. If you allow us, we will also review your tissue specimens and MRI scans of your acoustic neuroma.

Visit the ANA website to take the survey,
« Last Edit: February 14, 2014, 10:44:34 am by ANA »