Author Topic: Looking For Group in IN  (Read 4553 times)

terisandler

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Looking For Group in IN
« on: April 19, 2013, 12:49:45 pm »
I am trying to find info regarding a support group in NE Indiana.  The website indicates there is one in Indianapolis, but I am not receiving any response to emails.  Does this group exist?  Anybody with an AN in NE Indiana?  I am in Ft Wayne .  Thanks!
3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!

cathyroe

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Re: Looking For Group in IN
« Reply #1 on: December 07, 2013, 11:31:20 am »
Hello!
I am also in Indiana and feel totally isolated. I was wondering if there was anyone in the whole state besides me with an AN!
I live near South Bend.  Please email me if you want to talk or email each other.
Cathy
11/02/12  Diagnosed with AN  11mm X 5mm
05/29/13  MRI reports no change, stable
11/20/13  MRI reports 13mm X 7mm X5mm
5/20/14 MRI reports 14mm x 8 mm x 6 mm
7/29/14 GK at UPMC Lunsford. Now a Postie Toastie
1/14/15 Six Month MRI growth. 16mm X 8 mm
11/09/15  16 mm X 9 mm
9/15/16   17 mm x 11 mm x 8

arizonajack

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Re: Looking For Group in IN
« Reply #2 on: December 07, 2013, 05:28:16 pm »
Now you have a group.

Of two.

 ;D
3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0

cathyroe

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Re: Looking For Group in IN
« Reply #3 on: December 16, 2013, 06:33:25 pm »
Arizona Jack. You are funny! Yes, now we have a group of two. We email and talk on the phone and it feels wonderful to be in a group! (of two)
11/02/12  Diagnosed with AN  11mm X 5mm
05/29/13  MRI reports no change, stable
11/20/13  MRI reports 13mm X 7mm X5mm
5/20/14 MRI reports 14mm x 8 mm x 6 mm
7/29/14 GK at UPMC Lunsford. Now a Postie Toastie
1/14/15 Six Month MRI growth. 16mm X 8 mm
11/09/15  16 mm X 9 mm
9/15/16   17 mm x 11 mm x 8

arizonajack

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Re: Looking For Group in IN
« Reply #4 on: December 16, 2013, 09:21:14 pm »
Arizona Jack. You are funny! Yes, now we have a group of two. We email and talk on the phone and it feels wonderful to be in a group! (of two)

Yes, I am funny. A while back somebody wanted a little humor added to this site. So I obliged.

 ;D

Anyway, I just had a thought.

Use the search feature in the upper right hand corner of the page and put in Indiana.

There's a little over 100 posts from people with questions about Indiana.

You might be able to cull a few more members to add to your group.
3/15/18 12mm x 6mm x5mm
9/21/16 12mm x 7mm x 5mm
3/23/15 12mm x 5.5mm x 4mm
3/13/14 12mm x 6mm x 4mm
8/1/13 14mm x 5mm x 4mm (Expected)
1/22/13 12mm x 3mm (Gamma Knife)
10/10/12 11mm x 4mm x 5mm
4/4/12 9mm x 4mm x 3mm (Diagnosis)

My story at: http://www.anausa.org/smf/index.php?topic=18287.0