Author Topic: NF2 Testing Tomorrow  (Read 2413 times)

Nannybee

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NF2 Testing Tomorrow
« on: March 05, 2013, 07:47:23 pm »
Tomorrow morning I go for my blood work to test for the NF2 gene. The blood will be sent to Cambridge, Mass and now will be a wait to see if it is positive. Regardless, the geneticist suggested I consult with one of the NF2 centers. Anyone have experience with Penn?
AN 18x19 mm
3 meningiomas
NF2
AN treated with SRS April 2013
MRI Feb 2016 AN shrunk to 17 x 8 mm :)
Constant tinnitus in AN ear
Severe hearing loss AN ear

 


anything
anything