As I mentioned in this forum before, I have been diagnosed with an intracochlear schwannoma, and was told to "wait and see" and to get a followup MRI a year later. I was told that in most cases my particular type of schwannoma stops growing at a certain point, but in some cases could require removal before it does some of the bad stuff that more common acoustic neuromas do (vertigo, facial paralysis, and worse).
My question is to anyone who might have had something like this: before the next MRI (which I still don't know how I'm going to afford), is there an "early warning" I should be aware of? I get fluctuating but usually very loud tinnitus in my now-profoundly-deaf side, the tone of which seems to change hour by hour. I get sensations of pressure or fullness but it might, just might be congestion because it's hard to "localize" it.
I'm poor, frightened, and may not have a source of income or coverage for some time. I just want to know if someone's been here before. If the stuff that I was told could happen happens, is it sudden onset or some sort of gradual thing? Like being dizzy sometimes, or one side of the face being slightly lazy?
I'm terrifed. I'll just go out and say it. The ringing is maddeningly loud right now.