Author Topic: Thanks so much, as I'm about to start my journey.  (Read 2454 times)

jami

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Re: Thanks so much, as I'm about to start my journey.
« Reply #15 on: March 03, 2020, 07:32:54 pm »
Hi,

(StopAN1 - love the name. After my surgery my password was similar G3tThisAN! for a while)

I had CK, about 6 months after surgery. In the surgery they removed both the hearing and balance, so my story is a bit different.

BUT - i travel a LOT for work. A lot. This year I have been to Japan, Poland and India already.

The very first flight i took i had horrible headaches, and really struggled with resting. Its a bit better now, as long as i make sure I am rested and stress free. No new issues with balance (my new normal is that balance is a challenge, due to the surgery) when traveling. The tinnitus is super loud on the planes, and I use noise canceling headphones all the time.

Hope you both do well!
Jami
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5/17/18: 2.7 x 2.2 x 2.1cm
8/12/18 right retrosigmoid craniotomy @UNC
8/15/18: 1.0 x 0.4 x 0.4 cm
3/04/19: 1.0 x 0.8 x 0.5 cm
4/23/19 Cyber Knife treatment
10/23/19 0.7 x 0.3 x 0.8 cm

 


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