Welcome, Charles ~
The AN diagnosis is always daunting and uncommon - but hardly unknown - in young adults. I caution you and your son to be prudent in selecting a medical team and facility to perform AN surgery, if surgery is your choice. I am unable to offer any specific recommendations and I'm not in your geographical area but House Ear Institute in Los Angeles is renowned for AN surgery and offer a no-cost, no-obligation second opinion for AN patients if you send them a CD of Oliver's MRI scan. I was fortunate to locate a mature neurosurgeon with decades of AN surgery experience and enjoyed a good outcome (no complications) to my AN debulking surgery and follow-up irradiation (FSR). However, had I not found this doctor, who was local, I was prepared to make the 3,000 mile trip to L.A. to have my large (4.5 cm) AN removed by physicians with extensive experience in this demanding surgical procedure.
I hope some of our members who may have information on doctors in and around Kansas City will respond to your message. Meanwhile, thanks for joining and posting. Our collective thoughts and prayers go out to you and your son as he grapples with this vexing medical problem. Please know that although we're not doctors, we're here to help with information, advice and, most of all, support from those who understand the challenges of an acoustic neuroma diagnosis.