Author Topic: Schleral lens  (Read 28811 times)

Kaybo

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Re: Schleral lens
« Reply #45 on: February 14, 2013, 01:33:07 pm »
Now that makes me VERY excited...even though I had the miraculous improved vision after AN surgery!!  Seriously, it went from 20/400 in my R eye to a "come and go" (because of dryness) 20/30!!!

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

nancyann

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Re: Schleral lens
« Reply #46 on: February 15, 2013, 09:38:50 pm »
With the scleral lens my vision is 15/20 (or is it 20/15), anyway, haven't had this vision since my teens! UNBELIEVABLE!!
Dena, you ROCK for finding out about this lens!
Jill, thank you for all your support!
Kay, you are going to love this lens!
& for everyone w/ dry eye due to the AN, go for it!
I had the lens in today for 16 hours! No need for lubricant or drops!
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Jill Marie

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Re: Schleral lens
« Reply #47 on: February 16, 2013, 08:47:20 pm »
Hi Nancyann,

You are very welcome!  Can't wait to hear how Kay does and hopefully the word gets out to others as you said and they can be as happy as we are.  I am a little jealous as I still use a little bit of ointment but that could change, still happy as can be.  I sent Dena a message to let her know how thankful we are, hopefully she checks this thread soon to see for herself how much she has helped us.  Have a great weekend, Jill :D
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

Dena King

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Re: Schleral lens
« Reply #48 on: February 16, 2013, 09:37:23 pm »
Oh my goodness how time has flown by.........I am so thrilled to have helped you guys find some relief with your schleral lens.  I continue to wear mine as much as I  can.  With the very cold temps here in Southern Indiana, the heat is on a lot and drys out my eye more.  The heat in the car is worse.

One tip for easier insertion I have found is while bending over I open my eye as far as I can and with the opposite hand pull down the lower lid and insert the lens up and then under the lower lid.  The little air bubbles are fine, but that actually means that the lens is not completely full with saline.  Dr leclear said if the bubble is just about the size of the end of a ball point pen that should be fine.

I still use lacrilube ointment just once at bedtime.  Doc would prefer I didn't use ointment at all, but I can't stand to go without it.  I also wear either a bubble patch or goggles. Every night.  But during the day oh man what a difference the lens makes.  My vision is staying somewhat blurred because of the ointment, but after 30 plus years I am used to it.  Best of all my cornea is not thinning.

Sometimes after wearing the lens for a long time, when I take it out  (always with little blue rubber plunger) it really burns for a few minutes.  My ophthalmologist prescribed bromday drops just once that helps.  Also if the eye starts gettinga little dry feeling, I take it out and soak in contact solution for an hour or so, then put it back in.

I cannot imagine wearing any kind of makeup ever, no way I could.......

All in all life is good! 

Sorry it has been so long!
Dena



Lime size AN removed Nov, 1981
Complete left side facial paralysis/hearing loss.
1985-1987 7x11 crossover facial nerve graft surgeries -Julia K. Terzis MD, Norfolk , VA
Left eye tarsarophy 1990
Bi-Cros hearing aids 2011
Received left eye scleral lens, Sept, 2012

nancyann

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« Reply #49 on: February 20, 2013, 04:36:51 pm »
Today I got my 2nd (refitted) scleral lens - my dr, Kenneth Maller shapes/sizes it himself - this one is the perfect fit (even though w/ the 1st one I could wear it for 16 hours). I don't feel this one at all! He talked w/ me again re: the contact lens for the good eye - I have been hesitant, refused to wear it b/c I don't like contact lenses. He adjusted it, put it in. I have had it on for over 4 hours now & am doing great. I do add Systane single dose eye drops as needed, but I am adjusting to the feel of it & will wear both lenses to work tomorrow. My vision w/ both lenses is at least 20/20.
I can't wait to tell him when I go back in 2 weeks. He will be very happy to see me without my glasses on.  I will wear both lenses from now on & over the weekend buy a pair of non Rx. sunglasses! This scleral lens is amazing (have I said that enough?).
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Kaybo

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Re: Schleral lens
« Reply #50 on: February 21, 2013, 08:17:40 pm »
I talked to the occuloplastic (sp?) yesterday when I was there for my scratched cornea.  Did y'all go to a special, specialist for the scleral?  She made it sound like that there was only one Dr in all of Houston that could do this...even though the Dr I had to go to today was a corneal specialist...I asked the Dr today but he wasn't overly familiar with them - he said he would research it.  SO...do I go with him or do I drive into another part of Houston to go to "the one"???  It doesn't matter right this second, though, since my eye is all messed up right now...

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Dena King

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Re: Schleral lens
« Reply #51 on: February 21, 2013, 08:36:58 pm »
Well all I know is my doctor is the only dr fitting the scleral lense in all of LOUISVILLE, KY, so it is very specialized and there is a lot of training involved to learn how to measure and fit.

Good luck to you, I hope you find the right specialist to help you.
Lime size AN removed Nov, 1981
Complete left side facial paralysis/hearing loss.
1985-1987 7x11 crossover facial nerve graft surgeries -Julia K. Terzis MD, Norfolk , VA
Left eye tarsarophy 1990
Bi-Cros hearing aids 2011
Received left eye scleral lens, Sept, 2012

nancyann

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Re: Schleral lens
« Reply #52 on: February 22, 2013, 01:02:56 pm »
K: believe it or not, ophthalmologists & even ocuplastics aren't known for fitting a scleral lens, optometrists are & then, like Dena said, it is very specialized.  I googled scleral lens & that's how I found my optometrist, read up on him & decided he was the one.  Most of his scleral lens fittings are for people with Lasix surgery gone bad.
While I was reading about the scleral lenses, one of the researchers said she felt eye docs need to learn about this.
Good luck K, I know you'll find an optometrist specializing in scleral lenses!
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Kaybo

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Re: Schleral lens
« Reply #53 on: February 27, 2013, 09:06:40 pm »
OK girls - so what about insurance?  Did your medical insurance pay for this?  Do we have a code? Is this kind of what I have heard about the BAHA vs hearing aid fight??  The office insurance girl called and wanted my vision insurance info...not that I mind giving it to her but she said she needed to see what it covered for a contact lens fitting.  From all I have heard from y'all and what the Dr's have said, it sounds like I would get it more for MEDICAL purposes than vision...

Thanks,
K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Jill Marie

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Re: Schleral lens
« Reply #54 on: February 28, 2013, 12:54:09 am »
Hi Dena, 

So good to hear from you and once again, thanks so much for telling us about the lens.  Life is way better now and will be even better once I get the lens right and start enjoying outdoor activities that I neglected last year because of my eye.  I know what you mean about still using the eye ointment, my doctor would love to see me stop using it as well but I'm not ready to do that and not sure I ever will.  She is every excited about seeing what can be accomplished both for me and her profession, where I'm just thrilled beyond belief to be using such a small amount of ointment. 

As for the cornea, she didn't say anything about mine thinning, then again maybe she did but didn't use that term now that I think about it.  She said the layer was gone, then a week or two layer it was an uneven quilt of bumps and now my eye looks like a regular dry eye.  She could barely keep herself from jumping up and down with joy and feelings of accomplishment when she saw the cornea today,  her assistant was surprised as well, said it looked 5 times better.  I was relieved as I've had a couple of lenses that haven't worked so well for me as they try to find the right one and I've not been wearing the lens as much as I would like. 

I use the plunger too, in fact I bought a multi pack on line last week from Amazon.com, think they came out at about $3.20 a piece, I ruined one in about 6 weeks so figured I best keep some on hand.  I'm letting them air dry now so hopefully they will last longer now.  Thanks again, Jill :D

Nancyann,

So glad to hear that you don't feel the lens at all now, that's important.  My first lens rubbed the outside corner of upper eyelid, doctor tweaked it and all was good, she decided to try another lens that was a bit bigger and would fit a bit tighter, therefore protect more of the eye and less likely to move around or fall out.  Then lens was extremely irritating, couldn't wear it very long.  She gave me another loaner lens that was a size between the first and second lens ,it worked ok, wore that why she got me a lens like the first one I LOVED! Got it last week, it didn't work, so today she tried 3 different lenses, the last one fit the best, she tweaked it a bit and now I can't feel it at ALL!  It's amazing what a little change in the lens can do as far as feeling great and wanting to remove it because it feels like something is in your eye and you just want to get it out. 

How's the other lens working for you?  I completely understand your wanting to keep saying how amazing the lens is, after everything you've been through you deserve to be able to say it over and over again, we hear about the bad things that happen to people constantly in the papers so it's good to read good news and be reminded that good things do happen. 

Keep us updated, Jill 8)

Kay,

Sorry to hear your cornea is scratched, not sure that means you can't get the lens now.  In fact it might help heal it, not a doctor but it's something to look into.  As I mentioned earlier in this post, my cornea was really messed up and looks pretty good now. 

Glad you asked about the Insurance for the lens, was planning on asking about that as well.  I got my bill today and the lens was denied by my Insurance but all my office visits have been covered, only paid the $25 copay.  When I first talked to the doctor she said she was pretty good at getting insurance companies to pay for the lens for medical reasons, but a couple of weeks ago she said she wouldn't be surprised if I had to pay for the lens.  I rather not pay for it but it will still be cheaper than using all the ointment I had been using not to mention so much easier.  Will ask her to resubmit the bill to the Insurance with special info. 

My lens is NOT a scleral lens, it is a gas permeable lens like the scleral lens but not as big.  My doctor told me that the lens she does is from 14 to 16 where the scleral lens is an 18 and needs even more special fitting then my lens.  My lens costs $250 where she says the scleral lens is $10,000, although I thought I read that it is more like $5,000, still a big difference from what mine costs. 

Can't wait to hear how it works for you!  Jill  ;)
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

nancyann

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Re: Schleral lens
« Reply #55 on: February 28, 2013, 01:00:05 pm »
My doc is waiting for my final appt. to submit the bill to the insurance co. The scleral lens cost me $1,250.00, well worth the $$ - I spent a little over $600 last year for lubricant, so in 2 years I come out even. I was told the lens will last 2-3 years. (My total cost for everything is approx. $2,500., which included the contact lens & all visits to the doc).
My doc doesn't want me to use a plunger to remove it - I don't know why but I'm doing okay removing the lens now. It's putting it in that takes time, but I figure w/ practice that will come
along.
I'm going to wear my regular contact lens on weekends until I get use to it - I find myself using lots of Systane single dose during the day, & it still is difficult for me to take out, + the doc said I'm sort of 'hurling it' when I put it in, so practice, practice. My vision is so much better w/ the lenses.
Well, good luck everyone w/ the lens - this was the BEST birthday present I gave myself!
Always good thoughts, Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

ginsue

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Re: Schleral lens
« Reply #56 on: March 26, 2013, 01:35:34 pm »
Well guys I have read this whole thread word for word and I just found a doctor in Chicago the fits scleral lenses. Dr S Berry Eiden at North Suburban Vision Consulants. It is an hour and a half drive from my house but I was thinking that I had to go to Iowa or Ohio so this drive is OK.  I live in northern Illinois.  It's been 21 years and my eye is the thing I wish most that I could change.  Well it sounds like I can now take a little stress off my attending to it constantly.  I do wear makeup daily even though I use eye ointment throughout the day. I'm not sure why many have said that they do not, I just apply it after my shower before I put ointment in. The one question that I have for you guys is do you get a mucus build up in your eye during the day before you got the scleral lens? I do and I was wondering the effect on the lens.  When this happens it burns, I then take a Qtip with saline on it and remove the mucus then reapply ointment.  I just can't believe the great information that I had obtained on this site. First the SoundBite hearing divice (been fitted and awaiting it to arrive April 18) now this!  All this information on new technology when I finally came to peace with all my weaknesses.
THANK ROR EVERYTHING, Sue
« Last Edit: March 26, 2013, 04:25:38 pm by ginsue »
1991 tumor size- tennis ball (6.7 cm - Wikipedia)
facial paralysis, deaf, balance issues
1997gold weight and facial reconstruction
May 2013 SoundBite
Oct. 2013 Scleral lens

Jill Marie

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Re: Schleral lens
« Reply #57 on: March 26, 2013, 11:36:28 pm »
Hi Sue,

It will be 21 years in June that I had my surgery so I can truly relate to what you have been going through.  If I could choose between my hearing, smile or eye issues I would hands down ask for an improvement in the eye issue as well.  If you're interested I posted some more about the lens in a thread called:  Early Christmas present.  As for the mucus, yes I had it too before the lens, I would clean it out with my finger/finger nail, was afraid to use a cotton swab or anything like that, was worried about it getting stuck in my eye as well.  I don't have the mucus issue now as far as I can tell, I still use ointment in my eye a bit so it is blurry but so, so, so much better that it was before the lens.  I'm assuming you live in a small town and that is why you have to travel to get the lens.  It or a similar lens isn't as special as I thought it was in the beginning.  My eye doctor says I don't actually have a scleral lens but the paper work that came with the last one said it was, unless of course it's a paperwork for all lenses fits one type of a deal.  Look forward to hearing how the lens works for you!  Jill :)
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

ginsue

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Re: Schleral lens
« Reply #58 on: March 27, 2013, 11:48:09 am »
Hi Jill
Thanks for your responce.  I do live in a small town but my neighboring town is only about 15 minutes away.  I looked on the sclerallens.org web site and they do not list many trained doctors.  Dr Eiden is an accredited doctor with a long list of accomplishments. He is considered an  expert in complex cantact lenses and is  a research consultant.  I feel more comfortable with his experience so I will drive to go see him.  I go to your Christmas thread and read that too. I will update when I get it.
Sue
« Last Edit: March 27, 2013, 10:37:41 pm by ginsue »
1991 tumor size- tennis ball (6.7 cm - Wikipedia)
facial paralysis, deaf, balance issues
1997gold weight and facial reconstruction
May 2013 SoundBite
Oct. 2013 Scleral lens

Jill Marie

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Re: Schleral lens
« Reply #59 on: March 28, 2013, 11:55:37 am »
Hi Sue,

At work so just a quick note.  Found I had a bit of mucus in my lens eye this morning, my eye was irritated last night so I took the lens out.  As I mentioned in a previous post they are trying to find the right fit and I guess this last adjustment wasn't quite it.  What I'm trying to say is there shouldn't be any mucus issues if the lens fits right and your eye is doing fine.  Will get my loaner lens back after work and they will try to get my permanent lens adjusted again. Still, would take a lens that's not quite right over no lens at all.  Good luck with yours!  Jill ;)
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.