Hello,
My name is Mike; I'm 41 years old with a wife and two young children. I've recently been diagnosed with an AN on my left side.
I have seen two doctors and sought an opinion from a third. The third was from a well known clinic, but I was a bit turned off by the opinion and the manner in whic it was presented.
I would like to know if anyone has had experience with the two Doctors I've listed below. Particularly, those that have undergone retro sigmoid with either of these doctors. My tumor is just over 2.5 cm within the IAC and extends into the CP angle. Both have recommended RS for the clearest access, and say it will be a miracle if I retain any hearing on that side. (I now have very serviceable hearing on my AN side.) My biggest fear is long term or permanent headache.
Here are the Doctors & their suggestions.
Dr. Michael Seidman Henry Ford Hospital & Dr Jack Rock. -RS with likely to include some, possibly extensive intradural drilling of IAC for complete tumor removal.
Dr. Robert L. Daniels Spectrum Butterworth -Can't remember Neurosurgeons name, but he is AN focused. Two possibilities from him.
-Hearing is still good on AN side; investigate radiation to see if I'm a candidate, and determine if I'm comfortable with it.
-RS surgery to debulk majority of tumor followed by a smaller shot of radiation. - Theory being to minimize or eliminate intradural drilling and or any procedure that could potentially increase the likelihood of long term or permanent side effects. Headache, etc.
Both capable and highly credentialled men that have performed hundreds of AN surgeries, and continue to do so regularly.
Initially I was anti radiation, but have done some research and found some intriguing studies and stats. Most specifically from University of Pittsburg. Now I'm a bit torn.
Praying God will make it abundently clear which way to go, but your knowledge would be helpful as well.