Hi - I'm new to the forum. Just diagnosed a few weeks ago with a 2.9cm x 2.1 x 1.9cm AN on my right side. I'm 31yrs old. My only symptoms are tinnitus in both ears and a feeling of fullness in my right ear. I am in a unique situation in that my diagnosis was while I was overseas and I have not been diagnosed in the US and therefore do not have any records of my diagnosis. I have not seen a doctor yet, but am deciding now where I want to go. My insurance is okay, but if i need to, I could change now based off of where I think the best medical team is. I am on the west coast, but am willing to travel if I need to. It sounds like Standford, UCSF, and the House Clinic are common places on the West Coast. Are there others that I should look into, or are there other places in the US that are significantly better (ie. Dr. Fukushima, Skull Base Institute, etc.)? Any suggestions on insurances that better cover AN surgeries and treatments?
Thanks you so much. I am new to this, a bit scared, and feel too young to have a tumor this size and loose my hearing.