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Author Topic: Wish me luck?  (Read 4287 times)

MDemisay

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Wish me luck?
« on: March 28, 2012, 05:27:06 am »
Guys,

As I head into NYU today for my second opinion with Dr. Golfinos wish me luck with the Gamma Knife consultation?

Thanks for the prayers all!

Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

Jim Scott

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Re: Wish me luck?
« Reply #1 on: March 28, 2012, 11:34:22 am »
Mike ~

Best of luck to you today!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tod

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Re: Wish me luck?
« Reply #2 on: March 28, 2012, 11:47:56 am »
Best of luck today!

-tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

BeckyMax

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Re: Wish me luck?
« Reply #3 on: March 28, 2012, 10:11:35 pm »
How did it go?  Thinking about you.

becky
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7mm x 5 mm Left AN, diagnosed 2/9/12
7mm x 6 mm  8/12
9mm x 7 mm  8/13
Cyberknife 12/13

MDemisay

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Re: Wish me luck?
« Reply #4 on: March 29, 2012, 10:25:41 pm »
Everybody,

It went well but it leaves me with more questions as to treatment which I will ask at the NYC meeting this Saturday at NYU and on Wednesday with Dr.Kondziolka and Dr. Flickinger in Pittsburgh at UPMC.

I'm going to really sleep more soundly in a few days! I'm so excited! I am wondering if it makes any difference in terms of treatment whether I get treated now or in 3 months.

Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

pjb

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Re: Wish me luck?
« Reply #5 on: March 30, 2012, 11:11:27 am »
Quote from: MDemisay on March 28, 2012, 05:27:06 am
Guys,

As I head into NYU today for my second opinion with Dr. Golfinos wish me luck with the Gamma Knife consultation?

Thanks for the prayers all!

Mike

Good luck cannot wait to see what you think of him I have an appointment in May I met with Dr. Roland and was pleased with that meeting...

Best Wishes,

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

ash

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Re: Wish me luck?
« Reply #6 on: March 30, 2012, 02:38:51 pm »
Mike,

How did you come to choose these doctors? I am currently looking for any imformation I can find. I am deaf in left ear and a AN in my right. I am leaning towards cyberknife for everything I have read it gives a better chance of retaining your hearing.

Thanks, Bill
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Born deaf in left ear, Diagnosed AN in right ear 2/1/ 2010 4 x 3 x 2mm; 8/1/2010 4 x 3 x 4mm; 9/1/2011 6 x 4 x 4 mm; 3/1/2012 8 x 4 x 4mm; Recommendations: U of Penn-GK; Stanford-CK; NY-CK; Cooper-Novalis; Pittsburgh-GK; HEI- still waiting ; Treatment: Stanford-CK 5/10/2012 (Dr. Chang, Dr. Soltys)

MDemisay

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Re: Wish me luck?
« Reply #7 on: April 02, 2012, 01:33:32 pm »
Ashman,

If you are going with Gamma Knife check out these 3.  Number 1. Dr. Sisti at NY Presbytarian Number 2 Dr. Golfinos at NYU or #. Dr. Kondzuilka in Pittsburgh

if you are interested in Cyber Knife heck these out Dr.Haas (not sure of hospital affiliation), Dr. Chang (not sure of hospital affiliation), or Dr. Friedman of The House Instute in LA I believe all three do telephone consultations but I'm not sure send your MRI's.

Good luck on your AN journey.

If you cannot locate Haas and Chang hospital affiliation I am sure if you ask questions here, you will find them.

Perhaps, we will meet at the next symposium in LAor at a local NYC chapter ANA meeting the next one is June 9th at 1:00 pm at NYU.


Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

Jim Scott

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  • 1943-2020 Please keep Jim's family in your hearts
Re: Wish me luck?
« Reply #8 on: April 02, 2012, 03:02:06 pm »
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

MDemisay

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Re: Wish me luck?
« Reply #9 on: April 02, 2012, 03:07:22 pm »
Thanks Jim! I knew you would chime in!  ;D

Mike
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

ash

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Re: Wish me luck?
« Reply #10 on: April 02, 2012, 05:48:13 pm »
Tomorrow I am overnighting my information to Dr. Chang. Thanks for Dr. Haas information, I will look into him next.
Thanks for all the info, there is never enough.
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Born deaf in left ear, Diagnosed AN in right ear 2/1/ 2010 4 x 3 x 2mm; 8/1/2010 4 x 3 x 4mm; 9/1/2011 6 x 4 x 4 mm; 3/1/2012 8 x 4 x 4mm; Recommendations: U of Penn-GK; Stanford-CK; NY-CK; Cooper-Novalis; Pittsburgh-GK; HEI- still waiting ; Treatment: Stanford-CK 5/10/2012 (Dr. Chang, Dr. Soltys)
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