Thank you Frederick, for the very thoughtful post.
I do notice a difference if I don’t practice my vestibular exercises. It’s helpful for me to know that I’m not alone. It just catches me off guard sometimes when I think my balance is pretty good, and then surprise, it seems as if I am walking into walls or grabbing furniture to balance myself. Like you mentioned, it’s not everyday, but some times it feels like it is!
I still notice difficulty in the dark. Do you notice any challenges when it’s very bright out, such as walking toward the sunlight? Sounds strange but I also don’t feel my best on rainy days.
I don’t want to sound so gloomy, as things have definitely improved, I guess I am looking for that 100% when I may just have to accept 80. The fatigue is also bothersome, as I was so active before, sometimes I don’t know if is my neuropathic pain making me so tired or post tumor effects, or a combination, I feel like I need to rest after a small task.
I appreciate the words of encouragement, I should check in here more often. Sometimes it’s difficult to describe to others things what you are feeling or experiencing because “we look normal to them on the outside.” I am happy to hear that things have improved for you and you have adjusted to what they call “the new norm”
I hope you continue to do well and remain active! Thank you again!