Author Topic: 3 yr wait and watch is over time to act  (Read 11435 times)

New girl

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Re: 3 yr wait and watch is over time to act
« Reply #15 on: July 09, 2011, 06:57:54 am »
Hi Dave,  Keep us posted and take care of yourself!  I have an appt with McKenna in ~1 week to discuss options.  My preference at this time is surgery.  Best wishes.
9mmx14mmx9mm
Diagnosed 6/1/2011
Retrosigmoid Surgery 9/27/2011
Daniel Lee (MEEI) & Fred Barker (MGH) - Exceptional Surgeons

CHD63

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Re: 3 yr wait and watch is over time to act
« Reply #16 on: July 09, 2011, 08:47:36 am »
Hi Dave .....

I missed your original post because you posted just as I was leaving for California for my most recent surgery.

Just wanted to add my thoughts and prayers as you approach your surgery date.  This next month will fly by so do some fun things while you are waiting.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Chris P

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Re: 3 yr wait and watch is over time to act
« Reply #17 on: July 09, 2011, 11:07:23 am »
Hi Dave,
  Glad you have made you decision to have surgery on August 5th, that is one of the hardest parts is making a choice.  Now all you need to do is relax and let the doctors do their job.  One thing we all learn is we are not able to just ignore our AN, it has to be dealt with .  Once you have had your surgery you will be able to get on with your life.

   I did not have surgery , I had the gamma knife but I know how confused I was trying to decide what to do .  I am happy with my decision so far , but I did have swelling like you mentioned and if your tumor is close to your brain stem I think you have made a good choice for you. 

   I will keep you in my prayers. 

Chris P.
Small AN 14mm , right side , Gamma Knife Radiation 6/22/10 Gainsville, Florida.
Balance issues, hearing loss and facial weakness appeared four months post op.

AIteach

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Re: 3 yr wait and watch is over time to act
« Reply #18 on: July 11, 2011, 11:53:16 am »

Our thoughts and prayers will be with you on August 5th.  Good Luck and be blessed with a speedy and unremarkable recovery.  :)   I am a wait and watcher for 18 months now and about to go for my MRI check up.  Like you part of my problem is that I just don't want to make a decision because no option is risk free.  So far I am happy to say there has been no growth up to this moment (that I yet know about).  I am of course hoping that my status stays the same.  My insurance has changed dramatically and I may not have as many options as before.  I may not even be able to travel outside of NJ (not even to NYC or Philly).  I am concerrned about that, but I can't borrow any more worries.  I just wanted to add some support and let you know there are lots of us out here pulling for you.  Lauren
diagnosed Feb. 2010
wait and watch
tumor: 6mm
Fall 2018 still W&W 8mm
August 2021 grew to 1.2cm
8/21 Treatment: Fractionated SRS

skipg

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Re: 3 yr wait and watch is over time to act
« Reply #19 on: July 11, 2011, 01:58:42 pm »
Thanks for updating and keeping us posted. Sounds like you are in good hands with your decision. Keep us updated.
Skip
Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12

DHJ

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Re: 3 yr wait and watch is over time to act
« Reply #20 on: July 11, 2011, 08:21:00 pm »
thank you for all your support information. I am comfortable with my decision Your best wishes and prayers will help me get through this.I wish that I could have my AN removed tomorrow.  peace Dave

3yr wait and watch on left sided 2.9cm AN is over surgery 11/4/2011 Mckenna/Barker at MGH one year MRI 11/12/2012 all clear

lholl36233

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Re: 3 yr wait and watch is over time to act
« Reply #21 on: July 12, 2011, 03:08:38 am »
Will be thinking about you on August 5. 

You are in great hands at MGH.

Laura
Proton Radiation for my hemangioma at MGH December 2009.  Hearing has improved.  Doing great!

New girl

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Re: 3 yr wait and watch is over time to act
« Reply #22 on: November 02, 2011, 07:56:39 am »
Hi Dave - Best wishes for your upcoming surgery.  Nov 4th?  You are in good hands.
9mmx14mmx9mm
Diagnosed 6/1/2011
Retrosigmoid Surgery 9/27/2011
Daniel Lee (MEEI) & Fred Barker (MGH) - Exceptional Surgeons

JoJovb

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Re: 3 yr wait and watch is over time to act
« Reply #23 on: November 13, 2011, 09:05:15 pm »
Did you get surgery?
Diagnosed September 2011
AN on Watch and Wait Status
3 X 2 mm