Hi Everyone - I have a very small and fabulously round AN (2mm x 2mm x 2mm) on the right side, diagnosed in December 2010. I wrote about this in January, and for some reason my log-in information was deleted. I've figured out the glitch and am back on, so if my story seems familiar, that is why.
I went to my local ANAUSA support group meeting last month, which was quite useful. I am on watch and wait with another MRI scheduled for sometime in the spring or early summer. I sent my films to the House Ear Clinic for a free consultation. The doctor gave me good information in order to better understand where the tumor is (quite close to the cochlea and entirely in the inner ear canal) but was quite focused on surgery, which I'm not at all leaning toward.
As the last gentleman just posted, I also get almost daily headaches - kind of like a brain freeze when you eat ice cream. I searched past posts on the forum and found that most doctors do not associate ANs with headaches, but that there were several people in the past who have complained of headaches that worsened with other AN symptoms. Of course, it could be stress related, but any thoughts would be welcome. My symptoms started in spring 2009 with very severe vertigo that lasted about a day but kept me out of commission for several days. The vertigo attacks subsided and turned into almost daily dizziness (blech). I have no hearing loss and infrequent tinnitus, which just started.
One thing that I have found helpful is to follow the Meniere's diet of low salt, sugar, eliminating caffeine and alcohol. I'm also very focused on eating well and keeping my weight down.
My question - which I'm having trouble typing as the system is jumping up and down (!) is again on the headaches, and to solicit any input from those who have gone to Pittsburgh for Gamma Knife. I am honing in on that as my strategy, but would welcome any thoughts. I play music and would like to hold on to as much hearing as possible.
Thanks to this wonderful community - Ellen