Bill, welcome to the site, nice to meet you. Of course, it is unfortunate that we meet under these circumstances.
I am truly grateful that my post has helped you, and you, Joan, in any
way. As Jim
points out, "the essence of the forum is to inform and support other AN patients" and I am always grateful when I learn that something I've posted has been a help to someone.
I want to thank you, in turn, Bill, for your contribution. I did not know that the location
of the AN is relative to the post CK effects. Mine, as far as I can tell from the MRI, completely fills my auditory canal. But I get lucky again, in fact, I've always considered myself very fortunate, I have seem to have very few post CK effects. My Tinnitus can get louder than before, like Joan, but it is a steady "white noise". I was just reading that "some [early physicians] were convinced [tinnitus] was caused by wind that got trapped inside the ear and swirled around endlessly, so they tried to liberate the wind by drilling a hole into the bones around the ear or using a silver tube to suck air out of the ear canal". That's the kind of sound I get and again, how lucky that I didn't have to get my head drilled to let try to let the wind out
I've had a few "wonky" days and my balance suffers a little more, too, and I'm beginning to notice that a small, dull pain from time to time just behind my ear right where the skull seems to end occurs from time to time. I don't know what that is but it could be related - or not. Is that what you're referring to, Joan? I don't notice any numbness, though.
One other issue I've noticed since the drive home from Stanford. As a passenger in the car, I started noticing a "stiffening" of my neck. It was probably stress and a warm compress seemed to end it by morning. But I've noticed since then a strange "popping" in my neck much like when we "crack our knuckles". It happens at odd times. Noticeably when I'm, maybe, sweeping the garage floor. My head is bent down and I'm looking sideways. I wonder if anyone else has had a similar experience.
So Bill, one small point that really is more "bragging rights" if you want. Your tumor went from 3mm X 4mm X 6mm enlarging to 6mm X 9mm X 12mm. That's not actually doubling. Measuring by volume, it increased in size from 72 cubic mm to 648 cubic mm. It increased nine
times! It didn't just double
, it nontupled!
Happy holidays, everyone.